u/Affectionate-Sky9404

New diagnosis RRMS, and spouse burnout

I just got diagnosed with RRMS in January, and I hate to post asking for help or guidance but turns out MS hotlines are closed on weekends, and I’m typing this from rock bottom.

I’m F27 and my spouse is M32, I was not sick when we started dating however I am no stranger to poor health. This RRMS diagnosis came in December 2025, and my mental health plummeted equally as fast. I see my symptoms burning out my boyfriend, we live together and I’ve caught myself trying to hide how bad it is to avoid him getting stressed more. This weekend he had to leave a boys trip because I ended up in the ER for a flare, and today I can feel the resentment. I still barely understand this myself, and maybe that’s how I’m making it worse.

I had an Ocrevus infusion in February, and I’m currently taking baclofen, and lyrica for my symptoms since I primarily experience burning/biting sensations in my neck and headaches/facial nerve pain, sprinkle in some brain fog and confusion. I’ve also developed double vision and struggle with weakness. I feel awful even writing this out because I know there’s worse, but I’m essentially crying out for help.

I’ve turned 180 degrees into a new person he can’t stand (his words), and the worst part is he isn’t wrong. I’m depressed, I haven’t accepted MS, and I’ve lost 20lbs from not eating, and I’m angry this is happening. He’s burnt out, I’m burnt out, it’s a vicious cycle I can’t figure out a way out of.

Does it get better? I don’t know how to accept that this isn’t going to go away, and I need to come to terms before I lose my only support. I feel alone so I came here, maybe I’m hoping to hear how other people have handled this? Not feel alone? Idk, I’m alone in my own home asking for community on Reddit. :(

reddit.com
u/Affectionate-Sky9404 — 4 days ago

New diagnosis RRMS, and spouse burnout

I just got diagnosed with RRMS in January, and I hate to post asking for help or guidance but turns out MS hotlines are closed on weekends, and I’m typing this from rock bottom.

I’m F27 and my spouse is M32, I was not sick when we started dating however I am no stranger to poor health. This RRMS diagnosis came in December 2025, and my mental health plummeted equally as fast. I see my symptoms burning out my boyfriend, we live together and I’ve caught myself trying to hide how bad it is to avoid him getting stressed more. This weekend he had to leave a boys trip because I ended up in the ER for a flare, and today I can feel the resentment. I still barely understand this myself, and maybe that’s how I’m making it worse.

I had an Ocrevus infusion in February, and I’m currently taking baclofen, and lyrica for my symptoms since I primarily experience burning/biting sensations in my neck and headaches/facial nerve pain, sprinkle in some brain fog and confusion. I’ve also developed double vision and struggle with weakness. I feel awful even writing this out because I know there’s worse, but I’m essentially crying out for help.

I’ve turned 180 degrees into a new person he can’t stand (his words), and the worst part is he isn’t wrong. I’m depressed, I haven’t accepted MS, and I’ve lost 20lbs from not eating, and I’m angry this is happening. He’s burnt out, I’m burnt out, it’s a vicious cycle I can’t figure out a way out of.

Does it get better? I don’t know how to accept that this isn’t going to go away, and I need to come to terms before I lose my only support. I feel alone so I came here, maybe I’m hoping to hear how other people have handled this? Not feel alone? Idk, I’m alone in my own home asking for community or similar people on Reddit. :(

reddit.com
u/Affectionate-Sky9404 — 4 days ago

New diagnosis RRMS, and spouse burnout

I just got diagnosed with RRMS in January, and I hate to post asking for help or guidance but turns out MS hotlines are closed on weekends, and I’m typing this from rock bottom.

I’m F27 and my spouse is M32, I was not sick when we started dating however I am no stranger to poor health. This RRMS diagnosis came in December 2025, and my mental health plummeted equally as fast. I see my symptoms burning out my boyfriend, we live together and I’ve caught myself trying to hide how bad it is to avoid him getting stressed more. This weekend he had to leave a boys trip because I ended up in the ER for a flare, and today I can feel the resentment. I still barely understand this myself, and maybe that’s how I’m making it worse.

I had an Ocrevus infusion in February, and I’m currently taking baclofen, and lyrica for my symptoms since I primarily experience burning/biting sensations in my neck and headaches/facial nerve pain, sprinkle in some brain fog and confusion. I’ve also developed double vision and struggle with weakness. I feel awful even writing this out because I know there’s worse, but I’m essentially crying out for help.

I’ve turned 180 degrees into a new person he can’t stand (his words), and the worst part is he isn’t wrong. I’m depressed, I haven’t accepted MS, and I’ve lost 20lbs from not eating, and I’m angry this is happening. He’s burnt out, I’m burnt out, it’s a vicious cycle I can’t figure out a way out of.

Does it get better? I don’t know how to accept that this isn’t going to go away, and I need to come to terms before I lose my only support. I feel alone so I came here, maybe I’m hoping to hear how other people have handled this? Not feel alone? Idk, I’m alone in my own home asking for community on Reddit. :(

reddit.com
u/Affectionate-Sky9404 — 4 days ago