r/IBD

Idk what to do at this point. This is the issue that is stressing me out the most. Please tell me there is a way to heal this.

Urologists don't help. I thought my frequent urination issue was related to my hydronephrosis in my kidney, but they all said no. -_-

I'm pretty sure I have some form of IBD although I wasnt officially diagnosed.

- my body gets irritated/gassy from eating spicy foods/ certain types of meat and beans :( oregano oil makes me feel soooo goood and helps me pee less

- hair falls out easily

- Lost weight since I was 26, can't gain the same amount of muscle mass I had before. The best I can do is strengh training yoga which helps but still I look a bit frail.

- Bones crack

- Vitamin D & iron deficiency

- If I don't have a complete bowel movement, my urge to urinate is worse, apparently my bladder was extremely full the last time I went to the urologist and they were very alarmed. This most recent time, I took some time to take a dump beforehand, and there was no bladder retention. They were confused, but I didnt feel like explaining anything because doctors never take me seriously anyway...

I have SIBO and my MMC is wrecked and I got very bad reaction from digestive inflammation. How do you deal with a dry mucus. If I try to check my sphincter It is sticky and dry and I am pretty sure this is the reason my MMC is dead right now.

Hi everyone, please help

I wanted to ask if anyone here has Crohn’s affecting the duodenum and jejunum, or have that diagnosis but with normal calprotectin levels snd only positive pill cam.

I’ve been dealing with the following symptoms:

- Frequent belching

- Bloating

- Discomfort

- Weight loss and loss of muscle mass

- Daily abdominal pain (mostly in the upper right area)

What confuses me is that almost all my tests come back normal:

- Blood work

- MRe, mrcp

- Stool tests

- Ultrasounds

- Every Other possible standard exams

The only findings so far are:

- Positive capsule endoscopy (pill cam) showing changes in the jejunum

- Repeated findings of nonspecific duodenitis on endoscopy, with one small erosion or denudation

Has anyone had a similar experience or diagnosis based on this - Crohn’s in the small intestine with mostly normal test results except for capsule endoscopy?

I’d really appreciate hearing your experiences or any advice, because my docs are puzzeld and not knowing what to do…

Thank you!

Hi. I’ve been having IBD like symptoms for a bit over two years. (Long story why it took me so long to seek treatment).

Finally saw a PCP, blood results indicated I might have Crohn’s. Went for a colonoscopy, no Crohn’s detected, but the patho results say the findings ‘raise the possibility of collagenous colitis.’

My doctor seems unconcerned by this, really only focusing on the fact it’s not Crohn’s. I have a follow up with the doctor soon, but am wondering if it might be worthwhile to get a second opinion?

Hello! I want to start this post off by saying I fully believe in utilizing western medicine to achieve remission but unfortunately I am now on my second failed immunosuppressant/biologic and am now looking into some other factors that could play a role in why I am not achieving full remission. Even with steroids I still had dysbiosis and other gut/skin related symptoms.

Has anyone had any success after doing a GI map and doing a personalized protocol based off the results? Me and my GI and trying to think of anything that could be a missing piece and playing a role in why I do not fully respond to budesonide, mesalamine, azathioprine, Entyvio. I always have a decrease in the inflammation (verified with calprotectin, crp, etc) but regardless I still have loose stools, urgency, bloating, rashes, etc. A few years before I was diagnosed I tested positive and was treated for SIBO, with a few other occurrences where I had taken rifaxin with success. So I know dysbiosis has played a role for me. I’m wondering how beneficial a GI map could be with my current situation.