u/Jaded-Ad730

▲ 1 r/IBD

Help please! Duodenal and jejenual chrons???

Hi everyone, please help

I wanted to ask if anyone here has Crohn’s affecting the duodenum and jejunum, or have that diagnosis but with normal calprotectin levels snd only positive pill cam.

I’ve been dealing with the following symptoms:

- Frequent belching

- Bloating

- Discomfort

- Weight loss and loss of muscle mass

- Daily abdominal pain (mostly in the upper right area)

What confuses me is that almost all my tests come back normal:

- Blood work

- MRe, mrcp

- Stool tests

- Ultrasounds

- Every Other possible standard exams

The only findings so far are:

- Positive capsule endoscopy (pill cam) showing changes in the jejunum

- Repeated findings of nonspecific duodenitis on endoscopy, with one small erosion or denudation

Has anyone had a similar experience or diagnosis based on this - Crohn’s in the small intestine with mostly normal test results except for capsule endoscopy?

I’d really appreciate hearing your experiences or any advice, because my docs are puzzeld and not knowing what to do…

Thank you!

reddit.com
u/Jaded-Ad730 — 1 day ago

Pleas help! Duodenal jejenual chron?

Hi everyone, please help

I wanted to ask if anyone here has Crohn’s affecting the duodenum and jejunum, or have that diagnosis but with normal calprotectin levels snd only positive pill cam.

I’ve been dealing with the following symptoms:

- Frequent belching

- Bloating

- Discomfort

- Weight loss and loss of muscle mass

- Daily abdominal pain (mostly in the upper right area)

What confuses me is that almost all my tests come back normal:

- Blood work

- MRe, mrcp

- Stool tests

- Ultrasounds

- Every Other possible standard exams

The only findings so far are:

- Positive capsule endoscopy (pill cam) showing changes in the jejunum

- Repeated findings of nonspecific duodenitis on endoscopy, with one small erosion or denudation

Has anyone had a similar experience or diagnosis based on this - Crohn’s in the small intestine with mostly normal test results except for capsule endoscopy?

I’d really appreciate hearing your experiences or any advice, because my docs are puzzeld and not knowing what to do…

Thank you!

reddit.com
u/Jaded-Ad730 — 1 day ago