r/AshermansSyndrome

I learned I had severe Ashermans syndrome about 16 months after having my son via c-section, followed by severe postpartum hemorrhage, and one month later an emergency D&C to remove retained placenta with blood flow still attached (aka RPOC). I’ve had 2 hysteroscopies followed by 3 failed IUI cycles over the course of 9 months. I just had a repeat SIS and there is likely small scar tissue at the top of the uterus but trilaminar regrowth, though my lining only gets up to 6mm thick at most.
We had zero problem conceiving my son, came off BC and was pregnant within 6 weeks. This has been a tough journey with nothing working out. It’s been 6 months since the last hysteroscopy. At this point we have decided to just give it to God, and my doctor recommends taking a break for 6 months from fertility check ins, which we are more than happy to do. I guess I’m just looking for some hope or if other people have successfully conceived again.

(we are extremely blessed to have our perfect son, this journey has been especially difficult for me because my sibling and I have always been very close and I desperately want to give that relationship to my son and have another child get to experience that from him)

I had 2 hystos with my RE then went to Dr I in March. He cleared 15% scarring and told me not to come back the adhesions should not return. The next cycle I did IVF egg retrival. During the egg retrival, the re did a hystoscopy to check and said there was a small band in the corner she removed.

The first period after egg retrival, I started prepping for fet. I was put on an estrogen patch and 2 estrogen pills orally per day. When I went for my scan, I was told my lining was spotty and showed fluid. They canceled the fet.

The plan now is to have another period then do an hsg. My re said they don't think it is scarring but that the lining after an IVF cycle can be weird and not fully shed.

Has anyone had any experience with lining after Ivf? Is this likely scar reforming? Just looking for some insight on why my lining was looking deformed when I never had that issue even when I had scarring..lining was just thin with scarring

I had to have 3 D&Cs and 5 rounds of chemo due to a molar pregnancy miscarriage. Now, all failed attempts to complete in-office hysteroscopies have pointed to Asherman’s syndrome. I’ve been referred to Dr. Robinson in Washington, D.C for evaluation and potential procedures.

Does anybody have experience with Dr. Robinson they can share? How successful have people been with having children after fixing moderate to severe Asherman’s? Due to my age, molar history and anticipated Asherman’s, I’ve been told any pregnancy that could occur would be high risk so I’m trying to balance if the risk associated with trying to continue to conceive and Asherman’s surgery is worth it.

Hi All, I'm hoping someone here may have some insight, experiences, or ideas to share. I had undiagnosed placenta accreta with my daughter, born in 2021, and an emergency D&C to remove the placenta. IUD placed 6 weeks later. I had very light periods (more like spotting) for the next 3 years, but chalked it up to the IUD. Once that was removed in 2024, I was on the mini-pill for about a year (once again, when I brought up the light periods to my OB, they dismissed it as part of my body adjusting to the pills). Stopped the pill in May 2025, still had light periods, dismissed by OB again as an adjustment. Saw an REI after 6 months of trying to conceive (I'm 37), and he immediately suspected Asherman's. Had a hysteroscopic adhesiolysis in January 2026. He saw extensive scarring, which was blocking my right tube entirely, but said he thought it was all removed. Estrogen followed by provera to prevent re-scarring. My lining ever since has never measured above 2.54 mm, at any point in my cycle. That's including on Gonal-F, oral and vaginal estradiol. Normal HSG in February 2026, normal SIS in April 2026. After this most recent estrogen trial failed to raise the lining (May 2026), he seems to be indicating I'm out of options. I'm desperate for other ideas: has anything worked for anyone else? Does any of what I'm describing resonate with your case? I tried joining the Asherman's facebook group, but they keep rejecting me because I have a new profile (I'm not otherwise on social media so I made the account just to join). Thank you!!

So I talked to my dr this morning after my surgery on Friday - he said my uterus looks perfect he just removed some filmy adhesions that looked like spider webs. Cleared the cobwebs 😂
He did give us the go to try this month. Did anyone have adhesions like that and go on to have success?

Hi, is there anyone who successfully conceived after getting hysteroscopy ? I am looking for some hope as I just discovered I have asherman syndrome after a mmc at 8 weeks and d&c from 2 years ago.