Had unroofing and reimplantation of my anamolous right coronary artery. I'm feeling pretty good! Down to Tylenol only for pain and it's manageable.
The worst part is sleeping because I'm a side sleeper.
Has anyone else in the CHD community really struggled mentally after surgery? I’ve been dealing with a lot of anxiety, fear about my heart, hyperfixating on symptoms/palpitations, and honestly depression too since my surgery 2 years ago. It’s been hard to move past everything and some days I feel stuck thinking about my heart all day.
Did anyone end up taking medication for anxiety or depression, and did it help? I’m already in two types of therapy
My doctor is recommending that I have a Reveal implanted heart monitor put in. For those of you who have one, what is your opinion of it? Also, was yours implanted in your Dr office or in a hospital facility? Thanks in advance.
what kind of cardio exercise do y’all like, besides running? i have doctors’ orders to work in more cardio, specifically interval workouts. i tried “running” — i’m pretty sure i was at a 14 minute mile, it was more of a shuffle than a run. i don’t think it’s a very good time, i run into a ton of mental blocks and just generally don’t enjoy it. just looking for more options to try out!
I wouldn’t recommend reading this if you’re about to have surgery. I’m not trying to scare people, this is just my experience.
I had ASD closure in march of this year and I hate that I did. For me, all it’s done is made me feel worse and left me physically I guess disabled? The catheter used has left me with neuralgia which is a possible side effect after this type of surgery. Pretty much the nerve in my right leg is always misfiring which provides me with intense pain sitting, standing, walking, resting, everything (think when you hit your funny bone and your arm has that white hot shot of pain, but every time you move). I’ve tried multiple different meds and my dr is giving up on me and just telling me to get over it. Not only that, but I’ve almost passed out multiple times due to standing up and my vision going dark and crazy headspins. This never happened before the surgery but it happens at least 3-5 times daily now. My dr does not believe me and did a blood pressure test and went “oh well nothing happened” - that’s because it doesn’t happen every time I get up. I’m so angry and I’m so upset. I haven’t been to work since my surgery, I’m gaining weight due to lack of exercise… I’m very upset. Has anyone else dealt with neuralgia after surgery or dark vision?
Hi everyone! I’ve posted on here before. I was born with three holes in my heart, an ASVSD, ASD, and VSD as well as an aberrant right subclavian artery. I had open heart surgery at a couple months old to repair the ASVSD, and ASD. The VSD was left alone due to the 50% chance it would close on its own. It did. Over the pass few years i’ve become increasingly exhausted, with ongoing palpitations, shortness of breath and lightheadedness. I really didn’t expect for them to find anything, it was more for peace of mind. Instead, they found an ASD, “severe tricuspid regurgitation with an eccentric jet wrapping around the right atrium”, triscupid prolapse, and a mass in my trachea, or in the mediastinum. I’m at a loss for words and how to feel. I’ve been waiting on the ct that was meant to take a closer look at the mass. i should be starting medication soon for the regurgitation. With the ARSA, it’s starting to sound like surgery to remove the mass (and it depends on what it is) isn’t an option. I have a very physical job, and I don’t want to stop living my life but it’s so frustrating to hear my doctor say “after 20 years of your heart working the way it wasn’t supposed to it starts to decompensate”. Has anyone been through something similar? Any advice?
Hey guys! I’m 20M and honestly struggling a lot mentally right now with my health anxiety and symptoms.
About 2 months ago I started getting headaches and got diagnosed with hypertension. During testing they found I had coarctation of the aorta. I ended up getting it stented 3 weeks ago with a covered CP stent.
But even before the procedure, around 1.5 months ago, I started having this constant dizziness/rocking sensation. Not really lightheaded, more like I’m swaying or on a boat 24/7. My cardiologist referred me to a neurologist before surgery because aneurysms can apparently be more common in hypertensive/coarctation patients. I got a CT angiogram of the brain done and it came back clear. Neuro said it was probably anxiety and a tension type headache.
After the stent, my BP is now pretty controlled (usually around 120/65, max around 130/75), but the rocking/swaying is STILL there. It’s been around 40 days now.
I also get headaches behind my left eye sometimes and that area feels heavy. Got my eyes checked and everything was normal. Saw an ENT too and that was also clear. I’m currently taking Vertin.
Since yesterday I’ve been getting throbbing/pulsating headaches, almost like someone is knocking inside my head. I had a similar episode around 15 days ago too. My neck and upper back also feel kind of stiff since these days and im mostly just lying on my bed googling and gpting, though I can move my neck normally.
At this point I genuinely don’t know what’s happening to me and my anxiety is through the roof. Has anyone experienced anything similar after major health scares or heart procedures? Especially the rocking/swaying feeling? Rn, im scared that what if the brain CT they did was false and I actually do have something.