u/virgots26

Okay so I made a post earlier so sorry if I’m flooding the sub. So as of right now my only symptom is swelling and my nephrologist pointed out that I have a malar rash. So I was I referred to a nephrologist because I had protein in my urine once (0.197 protein/creatine) but recent urine work shows it’s back to normal. My nephrologist was on the fence about the biopsy in the first place since the protein wasn’t significant. My rheumatologist wanted to put me on cellcept but my nephrologist just said i would need the biopsy to confirm if it’s needed but my treatment plan is basically imuran, HCQ and prednisone 10 mg, plus possibly the cellcept. My mom thinks I should get a second opinion on my treatment plan, but I understand why my rheumatologist wants to be aggressive. I just didn’t want to put my body through overkill, especially since I’m not in pain and my c4 (14) and c3 (75) and actually a bit better than my last lab (10 & 65) but my rheumatologist is worried about my high ESR of 113

Would you guys get a second opinion or just do the treatment?

Hey guys just looking for some big sister advice. I’m thankfully not showing any symptoms but my rheumatologist wants to start some more aggressive treatment because labs are getting worse. He put me on medication a month and half ago but I guess its not working quick enough. Just been sad all day, because I just didn’t expect for this to happen especially not at 23. Take care of yourselves guys. I’m praying for remission soon💜

Hello, I’ve been taking HCQ for about 10 weeks now and my only symptom is under eye swelling that has gotten much better since starting. The one thing I noticed is the swelling does come back when I get into the sun but not as bad as it was before. I have no joint pain or any pain. I know HCQ takes more time to work and I thought my labs were a bit better than before. He’s really concerned about my ESR because it is 113. There was some protein in my urine before but my urine is back to normal. My dsdna was a 10 before but now it’s 15. My c3 before was a 10 and now it’s 14 and my c4 is now at 78 and before it was 65.

My rheumatologist now wants to put me on a low dose prednisone, cellcept and another medication I forgot the name of with HCQ. He wants to start benlysta as well because he’s concerned with lupus nephritis. I was supposed to get a biopsy done, but the hospital didn’t take my insurance so I’m still pending that. My kidney functions have been normal so far. This is all just so confusing to me. Especially when I thought I was getting better. I have a nephrology appointment soon and my rheumatologist wants to know their opinion.

My rheumatology NP believes it’s early lupus and I have a better chance of remission with aggressive treatment. What do you guys think? I’ve had people tell me when you have lupus you know, and finding all of this out is just so confusing.

Hello, I’ve been taking HCQ for about 10 weeks now and my only symptom is under eye swelling that has gotten much better since starting. The one thing I noticed is the swelling does come back when I get into the sun but not as bad as it was before. I have no joint pain and I haven’t developed a rash. I know HCQ takes more time to work and I thought my labs were a bit better than before. He’s really concerned about my ESR because it is 113. There was some protein in my urine before but my urine is back to normal. My dsdna was a 10 before but now it’s 15. My c3 before was a 10 and now it’s 14 and my c4 is now at 78 and before it was 65.

My rheumatologist now wants to put me on a low dose prednisone, cellcept and another medication I forgot the name of with HCQ. He wants to start benlysta as well because he’s concerned with lupus nephritis. I was supposed to get a biopsy done, but the hospital didn’t take my insurance so I’m still pending that. My kidney functions have been normal so far. This is all just so confusing to me. Especially when I thought I was getting better. I have a nephrology appointment soon and my rheumatologist wants to know their opinion.

My rheumatology NP believes it’s early lupus and I have a better chance of remission with aggressive treatment. What do you guys think? I’ve had people tell me when you have lupus you know, and finding all of this out is just so confusing.

Hello, I’ve been taking HCQ for about 10 weeks now and my only symptom is under eye swelling that has gotten much better since starting. The one thing I noticed is the swelling does come back when I get into the sun but not as bad as it was before. I have no joint pain and I haven’t developed a rash. I know HCQ takes more time to work and I thought my labs were a bit better than before. He’s really concerned about my ESR because it is 113. There was some protein in my urine before but my urine is back to normal. My dsdna was a 10 before but now it’s 15. My c3 before was a 10 and now it’s 14 and my c4 is now at 78 and before it was 65.

My rheumatologist now wants to put me on a low dose prednisone, cellcept and another medication I forgot the name of with HCQ. He wants to start benlysta as well because he’s concerned with lupus nephritis. I was supposed to get a biopsy done, but the hospital didn’t take my insurance so I’m still pending that. My kidney functions have been normal so far. This is all just so confusing to me. Especially when I thought I was getting better. I have a nephrology appointment soon and my rheumatologist wants to know their opinion.

My rheumatology NP believes it’s early lupus and I have a better chance of remission with aggressive treatment. What do you guys think? I’ve had people tell me when you have lupus you know, and finding all of this out is just so confusing.

Hello everyone I recently accepted a job offer in the ICU and I will be starting on days. I’m coming from one year on a stepdown at a trauma center and now I’ll be going to a brand new hospital that’s still in the process of being built (it opens in June) so I don’t know what type of ICU patients we will be getting just yet. How did you study? And did you have imposter syndrome? In my interview they told me majority of the nurses were coming with years of experience in the ICU and I’m worried I’ll be a little intimidated lol