u/unknowablecore

Not sure if this is the right reddit for this.

I have hypermobile ehlers danlos and pots. Over the last couple years my chronic joint pain and fatigue combo has gotten to a point where I am really struggling to live and work. For so long I was a major go-getter and pushed myself way beyond my pain threshold to prove I was worth just as much as anyone else and wasn't lazy. I do physio and all the other things that are supposed to help but I just can't keep up with life anymore. It's like I get home from work I can feed myself and maybe do a single chore. Generally I am an extremely neat person and I feel like my kitchen hasn't been properly clean in months, I struggle to cook, changing the sheets on my bed feels like hell, etc. I wont go on and on about all the ways it effects me, but I dont really qualify for the DTC despite being in pain and fatigued to a debilitating amount every single day, just not debilitating enough I guess.

Long story short I'm working full time and even tho I have accommodations and it's not a difficult/physical job it feels like I can't keep up with my basic house chores or even have a life outside of work. Hell the extra expenses I rely on to live (I.e. grocery delivery) take up so much of my budget it's hard to afford a life outside of work. My weekends are purely recovery and attempting to catch up. I can't even do my low energy hobbies like reading or drawing because I am to exhausted and/or painful. I feel like my quality of life would be so much better if I could work part time, but obviously I can't afford that. So many people say WFH jobs but there's never anything I can find other than AI trainer lol.

I live in metro Vancouver so it's already expensive but it's impossible to imagine myself living somewhere else this is my home. I also adore my job and feel awful/humiliated about all the time I've taken off since things have gotten so bad.

Probably just more a vent post than anything I guess because if anyone had found the golden ticket I'm sure I'd have heard of it but if anyone has some genuine advice / other resources that they are aware of I would take anything to make the financial load of being disabled a little better. I feel so lost, like every day I'm waiting for my life to fall apart and wonder why I just don't give up.

She is good at using her pee pad in her playpen, although she doesn't use it much anymore because she has gotten good at waiting to go outside now. I've wanted to give her some more free reign because training has been going great so I made my living room puppy safe but every time I have let her roam and hang out she pees! Often I want to let her roam right after I've taken her out and she's used the bathroom so I'm like where is the extra pee coming from? It's not even on my carpet too, I know people say using a peepad is basically like training them to do that but she just pees on the floor even though she doesn't pee on the floor part in her playpen. I use an enzyme cleaner on my floor she picks different spots (but surprisingly not my carpet) I leave the playpen door wide open too so she could go in there and use it if she really needed to. Kinda at a loss because the potty training has been going so excellent i'm not sure whats up 😅 she's been a pretty easy puppy so I can't complain to much but at the same time I'm not sure what to do or if I should just hold off letting her out in my living room for longer.

she is 4 months old, I've had her for 2, she's a mixed small breed 7.4lbs atm.

I'm getting TPIs soon and I of course read a bunch of horror stories now I'm really scared 🥲 I have wide spread joint and muscle pain from hypermobile syndrome and I'm like one more panic attack away from canceling. Like, generally my pain tolerance is pretty high. I had a kidney stone last year and even though I was crying from it I didn't find it intolerable pain, although the hospital staff moved me along quickly do to the tears 😭. Unrelated by I hate pain scales like I rated my kidney stone a 7/10 to the hospital staff and they were like "What are you sure?" but like yeah to me a ten is on the verge of passing out from pain but still conscious!!

But I am scared of muscle pain like, I've had muscle spasms that I would say hurt worse than the kidney stone. Sharp sudden pain also scares me more than any other type of pain. Does anyone have advice or even just wants to slap me in to going?