u/throwaway48273419

TL;DR: where should I go to get my liver transplant??

Trying to be vague here, so please bear with me. I am in need of a liver transplant and I am considering between two transplant centers where I would like to list as primary. I’ve been treated at both facilities for different needs related to my liver disease, and both centers agree that I need and would likely qualify for a transplant within the next couple of months.

On paper, FAcility A seems like the obvious choice, but I have received such poor care thus far at the hospital level (mostly related to management/administration decisions, poor communication, gaslighting, not listening to patient perspective - but the staff has been wonderful!) and I am scared to go back there for such a significant procedure. I have been receiving treatment at Facility A for the past couple of months and have had multiple failed procedures and ended up with a severe infection after my last visit.

I requested to be discharged from Facility A and transferred to Facility B, where they have basically cleaned up everything Facility A could not do in a manner of three days. I am trying to keep in mind that the hospital is separate from the transplant center, and both transplant facilities have excellent reputation. Here is my high-level pros and cons list – where would you go?

Facility A Pros: Top 10 facility Excellent reputation for care 10 minutes from home Shorter wait time for deceased donor transplant (statistically) Closer to my network of family and friends Would go here for follow up care/emergencies regardless Cons: Poor management in the hospital section Hospital care has been poor, including multiple failed procedures, overdosing for pain medication management, and caused very painful infection

Facility B Pros: Top 20 facility 9 hours from home Will require relocating for a minimum of three months Excellent care at the hospital level Surgeon skilled in a procedure Facility A cannot do Cons: 9 hours from home Longer wait time for traditional deceased donor transplant OR would require finding a living donor Insurance will be difficult to navigate Less of a community available to me

TL;DR: where should I go to get my liver transplant??

Trying to be vague here, so please bear with me. I am in need of a liver transplant and I am considering between two transplant centers where I would like to list as primary. I’ve been treated at both facilities for different needs related to my liver disease, and both centers agree that I need and would likely qualify for a transplant within the next couple of months.

On paper, FAcility A seems like the obvious choice, but I have received such poor care thus far at the hospital level (mostly related to management/administration decisions, poor communication, gaslighting, not listening to patient perspective - but the staff has been wonderful!) and I am scared to go back there for such a significant procedure. I have been receiving treatment at Facility A for the past couple of months and have had multiple failed procedures and ended up with a severe infection after my last visit.

I requested to be discharged from Facility A and transferred to Facility B, where they have basically cleaned up everything Facility A could not do in a manner of three days. I am trying to keep in mind that the hospital is separate from the transplant center, and both transplant facilities have excellent reputation. Here is my high-level pros and cons list – where would you go?

Facility A Pros: Top 10 facility Excellent reputation for care 10 minutes from home Shorter wait time for deceased donor transplant (statistically) Closer to my network of family and friends Would go here for follow up care/emergencies regardless Cons: Poor management in the hospital section Hospital care has been poor, including multiple failed procedures, overdosing for pain medication management, and caused very painful infection

Facility B Pros: Top 20 facility 9 hours from home Will require relocating for a minimum of three months Excellent care at the hospital level Surgeon skilled in a procedure Facility A cannot do Cons: 9 hours from home Longer wait time for traditional deceased donor transplant OR would require finding a living donor Insurance will be difficult to navigate Less of a community available to me