u/sickkasadog

I made a post here yesterday which I ask that you read, and am wondering if based on what I said on the post if it would be wrong or an overreaction for me to use a wheelchair when going out in public.

Right now my long distance partner is visiting me for my birthday and I still really want to go out on dates, but I feel so weak and tired most of the time.

I have a self propelled wheelchair for this exact reason but my dad is very judgemental about it and I am worried that I'd be doing too much if I decided to try and use it while having a date do I can actually go out.

Right now I am on 2.5 mg xyzal and amd always so tired.

I can get 8+ hours and wake up tired. My exhaustion feels like constantly needing to fall asleep no matter what. My eyes feel heavy and I'm just so so tired. But when it's time for bed I'm awake

Any advice on what helped you if you also experience/experienced this type of daytime exhaustion is appreciated

Hi y'all, first in foremost I am not asking for a diagnosis here! I understand nobody here is a medical professional and they cannot diagnose me. I'm Just looking to share my symptoms and have a bit of support.

I'm 19 and have had a pretty big health decline within the past half year. Right now my only working diagnosis is a possibility of MCAS.

I have so many symptoms I'm not going to list all of them here, but some of them have lead me to believe I have POTS or even CFS.

Right now I will be honest my sleep is ver6 bad... I get 6 hours of sleep on a good day, typically falling asleep at 4am.. its bad i know. Its been like this for 4 months.

My symptoms are extreme fatigue, feeling like I could constantly fall asleep no matter what, being short of breath very easily (for example I hung up a Poster on my wall today and had to catch my breath afterwards) my heart rate gets pretty fast when I do simple things such as sit up quickly, cry, take a shower, or even just walking or standing. Chest tightness, dizziness with exertion or when exposed to heat, ringing or muffled hearing with exertion or heat exposure, seeing silvery glitter like sparkles in my vision after exertion or heat exposure.

Its pretty rough right now and I'm really hoping I get answers soon.

I see my PCP on the 18th and want to being this up to her.

I've been having severe exhaustion/fatigue/sleepiness??? For a few months now and idk what is causing it. Considering that it could be an MCAS symptom but I'm not 100%

Right now I have a working diagnosis and my MCAS specialist/allergist has me on Xyzal, right now I take 2.5mg and seem to be doing well.

I don't have any severe symptoms and my diet isn't limited at all, I can eat anything.

My biggest issue right now is constantly feeling like I could just fall asleep no matter what. I only take an H1 blocker, but I wanted to know from others who experience the exhaustion like I do (if there is anyone!) do you find that H2 blockers help?

If not H2 blockers, please let me know what has helped you when it comes to feeling so tired. My sleepiness is debilitating! I can sleep 8 hours and be exhausted!

I'm 19f and I've been struggling with alot of symptoms for about half a year now, and right now I'm really trying to decide if I should play it safe and assume I have ME for now until I get some answers. I am not asking for a diagnosis though.

My symptoms are:

Fast heartbeat when standing up, sitting down, walking, bending down

Seeing Silver glittery sparkles after hot shower (since December)

Muffled ringing ear after bending over for 1 minute to pick something up (since march)

Muffled ringing ear after sexual activity (since march)

Dizziness with exertion (since march)

Phlegm when waking up in the morning (since march)

Headaches when waking up (since December)

Very exhausted during the day, feeling like I could always fall asleep (since February)

Unrefreshing sleep (since march)

Back and neck pain

Abdominal pain (since last October)

Hives, flushing, itching mouth, throat, and skin for the entirety of march that randomly disappeared at the end of march. Experienced one anaphylactic episode. My allergist mentioned MCAS and I'm currently on 2.5 mg of xyzal

I genuinely cannot find a way to figure out if I experience PEM no matter how hard I try but I'm very worried. I know the symptoms of PEM but I'm always in this constant state of exhaustion so I can't tell!

The very odd thing is that some things make me more exhausted than others, like I'm fully capable of having sex for 2+ hours and not feeling like im going to pass out, but if I stand up too fast I get out of breath and dizzy.

I can sleep 10 hours and still wake up tired

My exhaustion feels like a constant state of needing to fall asleep, thats my biggest symptom and concern.

I'm 19f and I've been struggling with alot of symptoms for about half a year now, and right now I'm really trying to decide if I should play it safe and assume I have ME for now until I get some answers. I am not asking for a diagnosis though.

My symptoms are:

Fast heartbeat when standing up, sitting down, walking, bending down

Seeing Silver glittery sparkles after hot shower (since December)

Muffled ringing ear after bending over for 1 minute to pick something up (since march)

Muffled ringing ear after sexual activity (since march)

Dizziness with exertion (since march)

Phlegm when waking up in the morning (since march)

Headaches when waking up (since December)

Very exhausted during the day, feeling like I could always fall asleep (since February)

Unrefreshing sleep (since march)

Back and neck pain

Abdominal pain (since last October)

Hives, flushing, itching mouth, throat, and skin for the entirety of march that randomly disappeared at the end of march. Experienced one anaphylactic episode. My allergist mentioned MCAS and I'm currently on 2.5 mg of xyzal

I genuinely cannot find a way to figure out if I experience PEM no matter how hard I try but I'm very worried. I know the symptoms of PEM but I'm always in this constant state of exhaustion so I can't tell!

The very odd thing is that some things make me more exhausted than others, like I'm fully capable of having sex for 2+ hours and not feeling like im going to pass out, but if I stand up too fast I get out of breath and dizzy.

I can sleep 10 hours and still wake up tired

My exhaustion feels like a constant state of needing to fall asleep, thats my biggest symptom and concern.

I am not diagnosed, but right now my allergist thinks I have MCAS which is my only working diagnosis atm

I also think I could have POTS, ive noticed I get extremely winded when doing very small tasks such as walking, sweeping, standing up, sitting down, just very small things. And if I stand for too long I find myself getting lightheaded or dizzy.

I have noticed while in the shower I can get dizzy and I will see these silver sparkly eye floaters, especially if the shower is hot.

Today was weird though. Not to be too TMI but my partner knows I am ill and struggle doing alot of things, but they asked me if I felt okay enough to have sex. I said yes and well we had sex duh 😭

But the whole time while having sex even moving around and changing potions (while lying down) I didn't feel myself getting winded, exhausted, or even dizzy in the slightest.

I know that one thing about POTS is that symptoms can improve while sitting or lying down, so this is something that sticks out to me alot.

I'm pretty scared that I could have CFS, buf I want to know if fatigue is a symptom of MCAS as well. I know PEM is required to have CFS but I honestly can't tell if I have PEM because I'm always exhausted..

My exhaustion feels like I camt constantly fall asleep no matter how much sleep I get, I always feel so sleepy and fatigued no matter what. I struggle to stay awake during the day. Even coffee doesn't keep me up

Hi y'all, first in foremost I am not asking for a diagnosis here! I understand nobody here is a medical professional and they cannot diagnose me. I'm Just looking to share my symptoms and have a bit of support.

I'm 19 and have had a pretty big health decline within the past half year. Right now my only working diagnosis is a possibility of MCAS.

I have so many symptoms I'm not going to list all of them here, but some of them have lead me to believe I have POTS or even CFS.

Right now I will be honest my sleep is ver6 bad... I get 6 hours of sleep on a good day, typically falling asleep at 4am.. its bad i know. Its been like this for 4 months.

My symptoms are extreme fatigue, feeling like I could constantly fall asleep no matter what, being short of breath very easily (for example I hung up a Poster on my wall today and had to catch my breath afterwards) my heart rate gets pretty quick when I do simple things such as sit up quickly, cry, take a shower, or even just walking. Chest tightness, dizziness with exertion or when exposed to heat, ringing or muffled hearing with exertion or heat exposure, seeing silvery glitter like sparkles in my vision after exertion or heat exposure.

Its pretty rough right now and I'm really hoping I get answers soon.

I see my PCP on the 18th and want to being this up to her.

​

I am 19 and was pretty active and healthy most of my life, and despite being born prematurely and dealing with things like severe social anxiety and depression in the past I had finally broken through that and was coming into my own, but then I got sick last fall.

Right now I have 0 diagnosis for my current health problems, just a diagnosis of acid reflux and scoliosis.

But since I had very severe symptoms this year things have been so so rough, and every time I thought it couldn't get worse, it did. First was abdominal pain(now thought to be endo by my pcp), kidney infection, then chronic headaches, and then allergic reaction type symptoms that led to an anaphylactic episode in march, now I feel constantly tired and fatigued and my sleep is a mess. I also get dizzy spells and ear ringing when exposed to heat or overexertion.

When I was dealing with my kidney infection in November of last year and crying in pain on my dad's living room couch, he told me that I shouldn't be so sad and that I will face much worse things in the future. I was upset that he said that and brushed off his words, but I should've listened because he was right.

Right now I'm going to be 20 in 8 days and all I can think about is how much I don't want to live anymore. In my previous post I said my birthday was in 2 weeks because I've lost track of time due to being so depressed.

I feel so guilty for taking my health granted. I feel guilty for getting colds or infections and brushing it off as nothing not knowing it could disable me one day. I feel guilty for not wearing a mask and I feel guilty for not appreciating the days I had where I was healthy enough to run and enjoy nature.

I'm supposed to get my long distance partner from the airport tomorrow night, and usually I'd be so excited, I'd be happy and looking forward to it. But now all I can think of is how we won't get to go on very many dates due to my fatigue and pain, how I'm going to struggle to be physically intimate because I am tired and hurting all the time, how gross I feel for struggling to do things like shower or basic hygiene despite that being something I used to pride myself in, and how I feel hopeless and afraid of the world every single day.

I apologize for so much venting but I just feel so lost and hopeless. I've never ever been suicidal until my health started to decline, now I think about it daily.

I'm not excited for my birthday, I'm not excited for gifts, im not excited for presents or even a special dinner. I just want my health back.

I used to care for animals and I was also an artist and I played the gituar, I enjoyed hiking and urban exploration as well as photography. Now all I do is lie in bed exhausted and if I do too much I get a headache and i get dizzy.

I told my mom I was suicidal and she said "you need to suck it up and get used to it because life stops for no one" I just wanted to be comforted, not scolded. Maybe I should expect less because my mom has recently lost her mom and is struggling, but I just wanted comfort.

My dad learned I was feeling suicidal because my partner told him, and woke me up this morning telling me he would do his best to find insurance for me. I appreciate it, but I had begged him for help previously and unfortunately it took him learning that I want to die in order to take me seriously.

Being undiagnosed is like a constant spiral of worrying and then feeling reassured, then right back to worrying.

On one hand, I am not diagnosed so part of me thinks, hey maybe you're anemic like your sister, or maybe you have a thyroid issue since your mom has hashimoto's, or you have narcolepsy, maybe sleep apnea. It could be anything until I get the proper labs done. And that makes me feel a little hopeful for improvement

But on the other hand, my allergist already thinks I could have MCAS, which I've heard is comorbid with CFS, and my TSH leves were normal with testing, and my hemoglobin is 11.5, so Maybe I just have CFS and I will never feel better, and maybe I'll even deteriorate. And then all hope is lost

I already had a huge scare in march when the MCAS symptoms showed up. I had to get put on oxygen and was given so much epinephrine. I was covered in hives and i was red and itchy, I lost 20lbs because I couldn't eat, and I was so miserable.

Now those symptoms are gone as of march 27th, but I fear every day that I will get that bad again and maybe that time it won't go away.

I'm trying to work with my therapist who is chronically ill herself to focus on the present, but it is so so so hard when all I can think about is how terrifying the future might be, or how good the past was.

I know I could have it worse, but I am just miserable right now. Thanks for listening if you did, I wish you an easy day.

I've posted here about twice within this week because I'm working on trying to get through the denial I have of being ill.

I am 19 and was pretty active and healthy most of my life, and despite being born prematurely and dealing with things like severe social anxiety and depression in the past I had finally broken through that and was coming into my own, but then I got sick last fall.

Right now I have 0 diagnosis for my current health problems, just a diagnosis of acid reflux and scoliosis.

But since I had very severe symptoms this year things have been so so rough, and every time I thought it couldn't get worse, it did. First was abdominal pain(now thought to be endo by my pcp), kidney infection, then chronic headaches, and then allergic reaction type symptoms that led to an anaphylactic episode in march, now I feel constantly tired and fatigued and my sleep is a mess. I also get dizzy spells and ear ringing when exposed to heat or overexertion.

When I was dealing with my kidney infection in November of last year and crying in pain on my dad's living room couch, he told me that I shouldn't be so sad and that I will face much worse things in the future. I was upset that he said that and brushed off his words, but I should've listened because he was right.

Right now I'm going to be 20 in 8 days and all I can think about is how much I don't want to live anymore. In my previous post I said my birthday was in 2 weeks because I've lost track of time due to being so depressed.

I feel so guilty for taking my health granted. I feel guilty for getting colds or infections and brushing it off as nothing not knowing it could disable me one day. I feel guilty for not wearing a mask and I feel guilty for not appreciating the days I had where I was healthy enough to run and enjoy nature.

I'm supposed to get my long distance partner from the airport tomorrow night, and usually I'd be so excited, I'd be happy and looking forward to it. But now all I can think of is how we won't get to go on very many dates due to my fatigue and pain, how I'm going to struggle to be physically intimate because I am tired and hurting all the time, how gross I feel for struggling to do things like shower or basic hygiene despite that being something I used to pride myself in, and how I feel hopeless and afraid of the world every single day.

I apologize for so much venting but I just feel so lost and hopeless. I've never ever been suicidal until my health started to decline, now I think about it daily.

I'm not excited for my birthday, I'm not excited for gifts, im not excited for presents or even a special dinner. I just want my health back.

I used to care for animals and I was also an artist and I played the gituar, I enjoyed hiking and urban exploration as well as photography. Now all I do is lie in bed exhausted and if I do too much I get a headache and i get dizzy.

I told my mom I was suicidal and she said "you need to suck it up and get used to it because life stops for no one" I just wanted to be comforted, not scolded. Maybe I should expect less because my mom has recently lost her mom and is struggling, but I just wanted comfort.

My dad learned I was feeling suicidal because my partner told him, and woke me up this morning telling me he would do his best to find insurance for me. I appreciate it, but I had begged him for help previously and unfortunately it took him learning that I want to die in order to take me seriously.

Being undiagnosed is like a constant spiral of worrying and then feeling reassured, then right back to worrying.

On one hand, I am not diagnosed so part of me thinks, hey maybe you're anemic like your sister, or maybe you have a thyroid issue since your mom has hashimoto's, or you have narcolepsy, maybe sleep apnea. It could be anything until I get the proper labs done. And that makes me feel a little hopeful for improvement

But on the other hand, my allergist already thinks I could have MCAS, which I've heard is comorbid with CFS, and my TSH leves were normal with testing, and my hemoglobin is 11.5, so Maybe I just have CFS and I will never feel better, and maybe I'll even deteriorate. And then all hope is lost

I already had a huge scare in march when the MCAS symptoms showed up. I had to get put on oxygen and was given so much epinephrine. I was covered in hives and i was red and itchy, I lost 20lbs because I couldn't eat, and I was so miserable.

Now those symptoms are gone as of march 27th, but I fear every day that I will get that bad again and maybe that time it won't go away.

I'm trying to work with my therapist who is chronically ill herself to focus on the present, but it is so so so hard when all I can think about is how terrifying the future might be, or how good the past was.

I know I could have it worse, but I am just miserable right now. Thanks for listening if you did, I wish you an easy day.

My allergist said I could have MCAS but I am scared and in denial. Is there a definitive test to rule it out? Like a bone marrow test or something-? Right now I'm on xyzal and I seem okayish but idk.

I'm 19f and my birthday is in two weeks. I'm having a very very hard time right now and I will be honest my will to live isn't very prevalent right now.

I started declining in health last October, but before that my life was genuinely amazing. I had an amazing friend group, was working my dream job, I was finally coming into my own and putting myself out there after years of severe social anxiety, and my partner and I started saving up to move out into a place of our own.

Now I'm moved back in with my dad and spend every day in pain and exhausted but I have no diagnosis at all. My allergist thinks I could have MCAS though.

I'm not looking forward to my birthday even though I usually would. I'm honestly just scared. My life was amazing and then right as I got comfortable everything came crashing down on me.

And worst of all Medicaid denied me because I live in a state that didn't expand healthcare. So ive been paying everything out of pocket and spent all of my savings. Im now considering taking out my bonds that were gifted to me (or my parent)b as a baby to pay for specialist and healthcare. I'm desperate for help.

I just want to give up and sleep forever at this point. I don't think my symptoms are nearly as severe as others but its so hard when I have so many symptoms and 0 answers. Its terrifying.

I'm 19 and turn 20 in two weeks and I just feel like giving up. I'm so mentally exhausted. I'm not even expecting to enjoy my birthday.

I've been sick for over half a year with no diagnosis and every time I think I've figured something out or think I'm improving something else happens.

First my issues started last September with abdominal pain, then I had a kidney infection, Next in December I started to get chronic headaches, one of them lasted two months long nonstop. When I had that headache my sleep got absolutely destroyed and I would go to bed 6-8am and wake up anywhere from 2-6pm. Right now I'm trying to fix my sleep and I find myself constantly exhausted most days. Then in March I started to have symptoms such as hives, itchy skin, mouth, throat, and flushing I also hot hot flashes. My allergist says it sounds like MCAS but there is still more testing to be done. My PCP also thinks I have endo.

My other symptoms are headaches pretty much daily, occasional light headedness and dizziness, sometimes I see sparks of light after hot showers or exertion, and I also find that my hearing can go muffled or my ears will ring after exertion sometimes.

I am so scared and I have no Idea what's wrong with my health

Today I had to move my things out of my old apartment to move back into my dads house due to my health. My dad is pretty harsh on me and said I wasn't allowed to take any breaks and that I had to keep moving. It's texas and it was 90 degrees out, I also had to carry things up and down the stairs. I had been having bed rest for about 4 months since my decline so it's not something I'm used to anymore.

As soon as I got home at around 6:30pm I felt so tired I couldn't do anything but lie on the couch. I eventually fell asleep at maybe 7:45 and woke up at 9pm still exhausted.

I keep thinking about what diagnosis I could have and it's so hard and confusing because I don't even know what is happening to me.

My long distance partner of two years is supposed to visit me for two weeks for my birthday in a few days and I'm worried I'll just have a bad time due to my symptoms and anxiety and make him bummed out and have a bad time too.

I hope this isn't insensitive but one of my biggest fears is having ME/CFS and I really can't tell if I have PEM or not because I'm always exhausted and in pain and it's been this way since my headaches in December.

I'm so scared and I feel hopeless, I'm expecting the worse for a diagnosis.

I'm not asking anyone here to diagnose me I'm just needing to talk about my symptoms.

I'm not diagnosed, but I'm 19f and have been struggling with health issues for over half a year.

I had symptoms starting this march that went away at the end of march out of nowhere that my allergist says seems like MCAS (hives, itchy mouth, skin throat, flushing) but she's still trying to rule other things out, my PCP also thinks I have endo.

My health got so bad I had to move back in with my dad when I was living in my own apartment.

In late December I started to have chronic headaches, one of them lasted until early March nonstop, that didn't go away with any medication. It made me lose so much sleep at night I became nocturnal (sleeping at 6am waking up at 4pm) now my sleep is pretty rough but I'm working on fixing it

I've been going to bed earlier for about 3 days now, one night I went to bed at 1am and woke up at 8am and genuinely felt good that day so I thought it was working, but I did the same yesterday and felt exhausted... Last night I went to bed at 4am in all honesty and woke up at 11am.

I am very very tired today.

I have been dealing with feeling really tired even after sleeping for some reason, even after getting 8 hours. I thought it was recent, but today I was moving my stuff out of my apartment and found a journal I wrote in during February saying how I am not feeling well rested after sleep.

Now I'm trying not to panic because I've been dealing with this for months and hadn't even remembered. I've already been scared of developing cfs but this is really making me panic.

I know PEM is required to have cfs but I honestly can't even identify what PEM would be for me since I already have back and leg pain constantly as well as headaches often. And sleep doesn't really make me feel rested except for the other day when I went to bed at 12am and woke up at 8. That was the first time I felt rested in months

I'm so worried right now I can't tell if it's a sleep issue or cfs

​

On march 8th of this year I woke up itchy and my arms covered in hives, I was given prednisone for a week and they went away, but other symptoms began to occur such as Flushing where I would get really hot and my face would turn red, itchy skin, and having an itchy mouth and throat. I was also brought to the ER and put on oxygen + given an EpiPen for an anaphylactic episode.

Whenever I would try to eat my mouth and throat would get extremely itchy and I would cough alot. Eventually I dropped 20 lbs due to struggling to eat.

I was so scared and worried and found the best allergist in my area to see and payed out of pocket for my visit.

I left my apartment and stayed with my mom until my allergist appointment and she helped take care of me

But literally the day before my visit my symptoms just disappeared out of thin air.

I stopped having itchy skin, my coughing went away, and my mom convinced me to try gluten free ice cream that I had 0 reaction to after being stuck on chicken and rice.

When I saw the allergist she did an IGE allergy test on me where everything came back normal besides 0.20 for Timothy grass, 0.30 for Ragweed, and 0.50 for cedar.

She also tested my tryptase and my TSH levels which both came back normal.

She told me my symptoms sounded like Mast cell activation and started me on Xyzal (but like I said ky symptoms disappeared before the Xyzal!!)

Right now I'm still on xyzal only half of 5mg but I'm honestly confused.

I can literally eat any food. i can eat fast food I can eat desserts I can eat like most things that are supposed to be high in histamine and feel relatively okay (besides other health issues I have)

I have no idea if I have MCAS because i thought with MCAS you shouldn't be able to eat all of the foods I'm eating and that I could randomly experience a bad reaction at any moment. But I've been free of symptoms for over a month.

My mom has hypothyroidism so I'm wondering if that's my case because my allergist said that thyroid issues can activate mast cells or mimic allergy symptoms but Idk the TSH test was normal.

I'm kind of just lost.

​

On march 8th of this year I woke up itchy and my arms covered in hives, I was given prednisone for a week and they went away, but other symptoms began to occur such as Flushing where I would get really hot and my face would turn red, itchy skin, and having an itchy mouth and throat. I was also brought to the ER and put on oxygen + given an EpiPen for an anaphylactic episode.

Whenever I would try to eat my mouth and throat would get extremely itchy and I would cough alot. Eventually I dropped 20 lbs due to struggling to eat.

I was so scared and worried and found the best allergist in my area to see and payed out of pocket for my visit.

I left my apartment and stayed with my mom until my allergist appointment and she helped take care of me

But literally the day before my visit my symptoms just disappeared out of thin air.

I stopped having itchy skin, my coughing went away, and my mom convinced me to try gluten free ice cream that I had 0 reaction to after being stuck on chicken and rice.

When I saw the allergist she did an IGE allergy test on me where everything came back normal besides 0.20 for Timothy grass, 0.30 for Ragweed, and 0.50 for cedar.

She also tested my tryptase and my TSH levels which both came back normal.

She told me my symptoms sounded like Mast cell activation and started me on Xyzal (but like I said ky symptoms disappeared before the Xyzal!!)

Right now I'm still on xyzal only half of 5mg but I'm honestly confused.

I can literally eat any food. i can eat fast food I can eat desserts I can eat like most things that are supposed to be high in histamine and feel relatively okay (besides other health issues I have)

I have no idea if I have MCAS because i thought with MCAS you shouldn't be able to eat all of the foods I'm eating and that I could randomly experience a bad reaction at any moment. But I've been free of symptoms for over a month.

My mom has hypothyroidism so I'm wondering if that's my case because my allergist said that thyroid issues can activate mast cells or mimic allergy symptoms but Idk the TSH test was normal.

I'm kind of just lost.

​

On march 8th of this year I woke up itchy and my arms covered in hives, I was given prednisone for a week and they went away, but other symptoms began to occur such as Flushing where I would get really hot and my face would turn red, itchy skin, and having an itchy mouth and throat. I was also brought to the ER and put on oxygen + given an EpiPen for an anaphylactic episode.

Whenever I would try to eat my mouth and throat would get extremely itchy and I would cough alot. Eventually I dropped 20 lbs due to struggling to eat.

I was so scared and worried and found the best allergist in my area to see and payed out of pocket for my visit.

I left my apartment and stayed with my mom until my allergist appointment and she helped take care of me

But literally the day before my visit my symptoms just disappeared out of thin air.

I stopped having itchy skin, my coughing went away, and my mom convinced me to try gluten free ice cream that I had 0 reaction to after being stuck on chicken and rice.

When I saw the allergist she did an IGE allergy test on me where everything came back normal besides 0.20 for Timothy grass, 0.30 for Ragweed, and 0.50 for cedar.

She also tested my tryptase and my TSH levels which both came back normal.

She told me my symptoms sounded like Mast cell activation and started me on Xyzal (but like I said ky symptoms disappeared before the Xyzal!!)

Right now I'm still on xyzal only half of 5mg but I'm honestly confused.

I can literally eat any food. i can eat fast food I can eat desserts I can eat like most things that are supposed to be high in histamine and feel relatively okay (besides other health issues I have)

I have no idea if I have MCAS because i thought with MCAS you shouldn't be able to eat all of the foods I'm eating and that I could randomly experience a bad reaction at any moment. But I've been free of symptoms for over a month.

My mom has hypothyroidism so I'm wondering if that's my case because my allergist said that thyroid issues can activate mast cells or mimic allergy symptoms but Idk the TSH test was normal.

I'm kind of just lost.