u/shotgunning-your-can

Does the hematuria ever subside?

Male 25.

I am 19 months in since my symptoms first started (cola urine after a gym session] and 3 months in since my diagnosis of igan HAAS class 1.

Current labs -

My current gfr - 120
no proteinuria
RBC are present

Usually my urine is clear.
Sometimes dark yellowish with clumped tiny speck of red blood (like a tiny red dot that is not solid when picked on a tissue but smearable) [cystoscopy, cytology done and infections already ruled out with 16 months of repeated different tests before the eventual biopsy]

And when i get fever I can see cola urine.

Has anybody experienced something similar? Does the hematuria ever subside? How is your prognosis?

Here is my ongoing treatment:

Iganef — budesonide controlled release
, 9 mg twice daily

Empanef — empagliflozin
Initially 10 mg once daily

Telma 40 — telmisartan 40 mg once daily

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u/shotgunning-your-can — 3 days ago