I was diagnosed in July of 2025, did 6 rounds of FOLFIRINOX, had surgery mid-November and 6 more rounds of FOLFIRINOX and rang the bell on March 5th.
About 3 weeks ago I started having sheering abdominal pain occasionally when getting up as well as the return of some GI issues. I was more than a little concerned about the outcome of my CT scan yesterday (May 4th).
The good news is that there's still no evidence of disease!
Bad news is that I developed a hernia and need to set up a consultation with the surgeon though the oncologist didn't seem concerned. Also, the atrophy status of my pancreas went from mild to moderate and I will likely need to increase my Creon (meeting with GI doc is Thursday May 7). Odd part of this is my insulin production has actually increased - no longer on supplemental insulin (oral meds only) and A1C is 6.0 and falling.
I'm sharing this because I know that this stuff can be extremely worrying (you see it on the sub all the time) but sometimes it is still ok.
Next CT scan is in August - LFG!