u/hadtochoosename

Getting back to learning

So my mom got me a piano tutor when I was 10 and I learned to play until I was 12. Since the tutoring stopped, I just played my favorite pieces at home with little to no practice here and there until I was 14 when we donated my piano. I haven’t played since then for over 10 years. Now I got me an electric piano and would like to get back to playing. I remember how to play a few pieces from muscle memory, but it seems that I can’t apply even pressure on the keys anymore. I also can’t seem to control my pace too well. I still remember how to read sheet music, although slowly. Overall I think I’ve very much gotten out of practice, and I was not a pro to begin with anyways. I want to practice systematically to build my muscles correctly so I don’t struggle with strength and speed as much.

Would anyone like to help out with tips and advice on how I can get back to playing and learning new pieces? I’d just like to be able to play for pleasure.

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u/hadtochoosename — 4 hours ago
▲ 8 r/lupus

Rheumatologist doesn’t seem to care

I’ve always run into rheumatologists who don’t seem to care. They just ask me routine questions and make me do some movements and that’s all they really do. I was diagnosed 15 years ago, it was the same back then. They even brushed off some of my symptoms saying oh you’re probably tired from hearing your baby sister cry all night etc. I eventually gave up on trying to advocate for myself and stopped mentioning symptoms I thought were minor.

Then I’ve recently been dealing with lupus nephritis complications and the nephrologists are way more involved in my treatment now. Not perfect still but they care better than the rheums. I mean I get that with kidney involvement, there aren’t much that rheumatology can do, but I barely know who to even reach out to if I have lupus related symptoms. I know I have to figure these things out on my own, but still I feel unwelcome to reach out if that makes sense. The last rheumatologist I saw didn’t even know I was previously diagnosed 15 years ago and was just reading off my charts as she went. Then the only things she offered during that visit was refills for my meds and the next appointment which is in 3 months. I feel like that’s a little too further away given that I have active inflammation that’s affecting my kidneys? Or am I acting needy and overly dramatic?

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u/hadtochoosename — 1 day ago

Should I switch over to C1

Would it be a stupid move to move completely over to C1 from BofA? I only have these two accounts but I can’t keep up with BofA’s monthly maintenance fees, which isn’t a lot but things add up when finances are tight. So I’m thinking of closing my bofa account altogether and primarily using c1. For context, I live in CA so barely any physical location here I think? But there are plenty of all bank atms nearby for me so accessing ATM hopefully won’t be an issue. What else should I consider?

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u/hadtochoosename — 1 day ago
▲ 1 r/lupus

Cyclophosphamide and alopecia

Do you notice progressive hairloss after the second or third dose of cyclophosphamide? I have my third one coming up and I already suffer from bad hair loss. Worried it’ll only get worse. Any product recommendations or tips to manage it?

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u/hadtochoosename — 5 days ago

Going through a major health challenge and looking for someone to talk to

I have no close friends to physically meet and go through this with and it’s taking a toll on my mental health. The health challenge is not terminal so I’ll be around for a while. I’m in the 22-25 age range. No interest in romantic relationships. Preferably someone in Southern California

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u/hadtochoosename — 5 days ago