u/caninething

Just a disclaimer I am not looking for medical advice here!! More so just support or general advice

I'm 19f and I have suspected MCAS (Have seen an allergist who brought it up as well as a few ER doctors when I was hospitalized for anaphylaxis)

My symptoms were: Flushing, Hives, itching skin, itching mouth and throat after eating, brain fog, wheezing, coughing, trouble breathing, diarrhea, and anaphylaxis.

My symptoms appeared out of nowhere on the 8th of march. I had taken Prednisone for about a week and it got rid of my hives but everything else seemed to get worse and I ended up losing 20 lbs due to not being able to eat.

On the night of the 24th I was hospitalized for dehydration and malnutrition. My mom came to see me in the hospital and told me when it was time to come home I should stay with her for a few days instead of go back to my sister's apartment.

(Just for some background last November I moved in with my older sister after having some Urinary issues + suspected endometriosis and wasn't able to care for myself. A month after moving with my sister I started to decline more and more instead of improving, developing things such as Chronic headaches and brain fog)

Anyways, I stayed with my mom on her couch for 3 days, eating only gluten free chicken nuggets and white rice with salt. One day I felt brave and decided to try dairy free + gluten free ben and Jerry's cherry garcia icecream. I expected my throat to get tight and to feel horrible but.. I was fine. And of course I devoured the whole thing.

After that I saw my allergist on the 27th. She told me it sounds like I have MCAS and that she'd test my thyroid, my tryptase, and do an IGE allergy test. Everything came back normal just yesterday and she wants to see me again soon to discuss what's next.

She also noted that my reactions do not sound food related and that I should be okay. She prescribed me Xyzal to take nightly as well.

I felt very unsure about that because I noticed every time I'd eat I would feel tightness in my throat and my mouth would itch.

My mom who accompanied me during my appointment tried to tell me I should trust the doctor and have something I'd usually eat. She asked me if I wanted to go to Olive garden because I love Pasta. I was very hesitant but she ended up convincing me to go have lunch with her.

We went to lunch and I was very scared because I didn't have an epipen, but my mom reassured me that she'd be right there if something did happen.

I tried to have a bread stick and waited to see if anything happened. I waited about 5 minutes and it was fine so (somewhat stupidly) I went all in I dipped the breadsticks in Alfredo, had soup, and pasta with meat sauce.

And amazingly enough nothing happened!! nothing at all.

I chatted with my mom over lunch and she brought up the possibility of something in my sister's apartment triggering me. I acknowledged that it could be a possibility but I didn't really know what would be triggering me there and still don't.

But to be safe I decided until I get my results I'd go stay with my dad at his house because I was and still am very scared of my symptoms returning. They were so severe I was afraid for my life to be honest.

I'm currently still at my dad's and have been free of symptoms for two weeks, taking the Xyzal nightly. I am also recovering from pneumonia that I caught.

But the thing is I keep having this anxiety sneak up on me that my symptoms will randomly return. It is very difficult to try an enjoy my day without symptoms when all I can worry about is if it'll just all come back again.

I'm now eating foods I thought I wouldn't be able to have again. Pasta, meat, fruits, even icecream and pastries. I'm so scared It'll all get taken away again.

I'm unsure what to do in my situation.

I have a therapy appointment tomorrow and want to address some of this stuff 8f possible so I can try to lessen my anxiety and possibly try to continue with my life without fear. Event though I am very afraid of symptoms returning.

I feel very strange and odd suddenly not having symptoms that could've killed me, now they're just randomly gone but I feel this sense of doom like it will come back. And maybe it will, but I want to enjoy my time being somewhat well.

Hearing some supportive words or advice on maybe how I should bring this up to my therapist would be very helpful.

Just a disclaimer I am not looking for medical advice!! More so just support or general advice:-)

Hi y'all. I'm 19f and I have suspected MCAS (Have seen an allergist who brought it up as well as a few ER doctors when I was hospitalized for anaphylaxis)

I made a similar post to this about a week ago but thought I'd update and give more details. (unrelated but I also have suspected endometriosis)

My symptoms were: Flushing, Hives, itching skin, itching mouth and throat after eating, brain fog, wheezing, coughing, trouble breathing, diarrhea, and anaphylaxis.

My symptoms appeared out of nowhere on the 8th of march. I had taken Prednisone for about a week and it got rid of my hives but everything else seemed to get worse and I ended up losing 20 lbs due to not being able to eat.

On the night of the 24th I was hospitalized for dehydration and malnutrition. My mom came to see me in the hospital and told me when it was time to come home I should stay with her for a few days instead of go back to my sister's apartment.

(Just for some background last November I moved in with my older sister after having some Urinary issues + suspected endometriosis and wasn't able to care for myself. A month after moving with my sister I started to decline more and more instead of improving, developing things such as Chronic headaches and brain fog)

Anyways, I stayed with my mom on her couch for 3 days, eating only gluten free chicken nuggets and white rice with salt. One day I felt brave and decided to try dairy free + gluten free ben and Jerry's cherry garcia icecream. I expected my throat to get tight and to feel horrible but.. I was fine. And of course I devoured the whole thing.

After that I saw my allergist on the 27th. She told me it sounds like I have MCAS and that she'd test my thyroid, my tryptase, and do an IGE allergy test. Everything came back normal just yesterday and she wants to see me again soon to discuss what's next.

She also noted that my reactions do not sound food related and that I should be okay. She prescribed me Xyzal to take nightly as well.

I felt very unsure about that because I noticed every time I'd eat I would feel tightness in my throat and my mouth would itch.

My mom who accompanied me during my appointment tried to tell me I should trust the doctor and have something I'd usually eat. She asked me if I wanted to go to Olive garden because I love Pasta. I was very hesitant but she ended up convincing me to go have lunch with her.

We went to lunch and I was very scared because I didn't have an epipen, but my mom reassured me that she'd be right there if something did happen.

I tried to have a bread stick and waited to see if anything happened. I waited about 5 minutes and it was fine so (somewhat stupidly) I went all in I dipped the breadsticks in Alfredo, had soup, and pasta with meat sauce.

And amazingly enough nothing happened!! nothing at all.

I chatted with my mom over lunch and she brought up the possibility of something in my sister's apartment triggering me. I acknowledged that it could be a possibility but I didn't really know what would be triggering me there and still don't.

But to be safe I decided until I get my results I'd go stay with my dad at his house because I was and still am very scared of my symptoms returning. They were so severe I was afraid for my life to be honest.

I'm currently still at my dad's and have been free of symptoms for two weeks, taking the Xyzal nightly. I am also recovering from pneumonia that I caught.

But the thing is I keep having this anxiety sneak up on me that my symptoms will randomly return. It is very difficult to try an enjoy my day without symptoms when all I can worry about is if it'll just all come back again.

I'm now eating foods I thought I wouldn't be able to have again. Pasta, meat, fruits, even icecream and pastries. I'm so scared It'll all get taken away again.

I'm unsure what to do in my situation.

I have a therapy appointment tomorrow and want to address some of this stuff 8f possible so I can try to lessen my anxiety and possibly try to continue with my life without fear. Event though I am very afraid of symptoms returning.

Hearing some supportive words or advice as well as maybe how I should bring this up to my therapist would be very helpful.

Hope everyone has a good night/day with low symptoms/pain 💚

Hi y'all, I had looked around in r/airpurifiers but sort of struggled to find the information I needed. I do have a learning disability so I believe that may be part of why I could not take in the information I was seeing very well as I often need things simplified for me

I am asthmatic and chronically ill (suspected by my doctor to have MCAS ans endometriosis.)

I live with my father who unfortunately does not believe in COVID or masking at all. So I want an air purifier for my room to reduce the risk of me getting sick as much as possible

I am looking for an affordable yet effective air purifier for my small bedroom. I am open to building a CR box myself, but if you have any recommendations for effective purifiers I can just purchase on my own that would be great! (and explaining why it's effective and how it works is optional but greatly appreciated)

Thanks :-)

Hi yall, I'm not sure if anyone will even read my long post but I really need to vent and possibly hear some kind words :(

I'm 19f and suspected to have Endometriosis, IC, and possibly MCAS. (As told by my PCP and allergist)

I have experienced things such as Chronic headaches, chronic abdominal pain, Hives, flushing, itching skin, trouble breathing, and even anaphylaxis. I've been hospitalized and put on oxygen multiple times.

I've been struggling with my health for over half a year now but it feels like so much longer.

I had been dealing with headaches and abdominal pain for about 6 months and had gotten used to it. But on the 8th of last month I started having hives and trouble breathing. My face would turn bright red and I'd become very Itchy and my throat would occasionally close up out of seemingly nowhere.

I ended up dropping 20 pounds due to having a reaction seemingly any time I'd eat. It was very scary and I genuinely thought I would die. Even my family was scared for me and they usually brush off my health issues.

I was in and out of ERs and hospitalized a few times within such a short amount of time.

As of right now I've been free of those anaphylactic symptoms for almost two weeks. Which is amazing! I am grateful for every day that I am free of those horrible symptoms. I try to enjoy meals as much as I can after not being able to eat as well.

It was so traumatizing and scary. But the thing is, part of me can't help but worry they'll come back. I am so scared they'll just come back again.

I am especially worried because I've yet to get any lab results back from my allergst and have no idea what was even happening to me or if it could come back at any moment.

The symptoms randomly appeared one day and randomly disappeared about two weeks later. I hadn't taken any new meds for the symptoms it just randomly went away!

I try to keep my mind off of it and focus on the good right now but sometimes it just sneaks up on me and I feel so afraid. It was so horrifying and scary to not be able to breathe and get stuck with EpiPens and see how worried my mom looked.

If anyone has any kind words or even reassurance that would be very appreciated. Thank you if you took the time to read my post