▲ 6 r/rarediseases
How do we figure it out?
My daughter is 24 years old and has many symptoms that have made her functionally incapacitated as far as being able to work, live a normal life, etc.
We've tried to find someone to help us figure out what she might have, but most doctors seem to feel she's malingering and she is NOT. As her mother, I can see the changes in her over the past 10 years, and I am growing increasingly concerned about her.
Can anyone tell me of a place where we could enter her symptoms and get some idea of which way to go? She's seen a rheumatologist and a regular MD who's run some testing but neither had any helpful information except that it's not RA.
Thanks in advance for any help.
u/ValkyriesSoulfulSwan — 6 days ago