u/Theamikalsen

Does anyone else have any chronic eye diseases?

I have Meesmann corneal dystrophy.
With this condition my eyes get really dry and painful. Does anyone else have some form of corneal dystrophy? Does anyone have any recommendations for treatments or eye drops?

Fuck my life.
I’m a 21 year old girl with this fucking disease that is ruining my life. I have about 15% vision and I’m in pain a lot of the time. I was diagnosed at around 18 and there’s no one that can relate or even seem to understand my problems. My vision cant be corrected and there’s no cure. I’ll never be able to drive or have children (I chose not to because there’s a 50% chance for them to inherit it)
I have no education because of the difficulties and I’ve tried working but my eyes seem to get in the way of everything. Other than that fine. I can’t see well but I can see enough so that people don’t notice. I feel like the most blind non blind person ever. It’s like I feel fine and I’m able to do most normal everyday things. Go outside, shopping, hang out with friends and I don’t feel any different until I’m held back by my vision. It’s so hard to explain because most people just ask if I’m nearsighted and I have to explain that it’s not like that and I have small cysts in my eyes 🙄 I can’t explain how I see because I’ve always been this way. All I know is that if you hold up a piece of paper with something on it 1 meter in front of me.. I can’t read it. There’s no data on how many people ln my country that has this because of how rare it is. I was the only person my hospital has ever had with it. I’m just so tired of this and I wish someone could relate

Fuck my life.
I’m a 21 year old girl with this fucking disease that is ruining my life. I have about 15% vision and I’m in pain a lot of the time. I was diagnosed at around 18 and there’s no one that can relate or even seem to understand my problems. My vision cant be corrected and there’s no cure. I’ll never be able to drive or have children (I chose not to because there’s a 50% chance for them to inherit it)
I have no education because of the difficulties and I’ve tried working but my eyes seem to get in the way of everything. Other than that fine. I can’t see well but I can see enough so that people don’t notice. I feel like the most blind non blind person ever. It’s like I feel fine and I’m able to do most normal everyday things. Go outside, shopping, hang out with friends and I don’t feel any different until I’m held back by my vision. It’s so hard to explain because most people just ask if I’m nearsighted and I have to explain that it’s not like that and I have small cysts in my eyes 🙄 I can’t explain how I see because I’ve always been this way. All I know is that if you hold up a piece of paper with something on it 1 meter in front of me.. I can’t read it. There’s no data on how many people ln my country that has this because of how rare it is. I was the only person my hospital has ever had with it. I’m just so tired of this and I wish someone could relate