It’s been incredible seeing all the love Jax has been getting lately. ❤️
What started as a simple video of him enjoying a game turned into thousands of people cheering him on, and as his parents, that means more than we can put into words.
We’re also really proud that so many people are learning a little about Angelman Syndrome through his video.
For those who are curious… Angelman Syndrome is a rare neurogenetic disorder that affects about 1 in 15,000 people. It can cause severe coordination and balance issues, little to no speech, intellectual disabilities, and a high risk of seizures. In simple terms, almost every part of daily life is harder for Jax to navigate.
That’s why moments like this matter so much.
For a lot of people, it may have just looked like a kid excited about a game. For us, it was seeing pure joy, freedom, confidence, and connection in a world that often makes things difficult for him.
So truly, thank you to everyone sending Jax kindness, encouragement, and positive vibes. The internet can be a rough place sometimes, but you all have made it feel really beautiful lately. ❤️