Had to come home for an appointment & I feel so guilty… 😣
Hey guys. I had my little man last Wednesday… he’s a week old today. I found out while I was still pregnant that he had coarctation of the aorta and would most likely need open heart surgery after birth. They ended up doing the open heart surgery on him when he was 2 days old. Scariest thing I’ve ever been through… I can’t believe I made it through this past week without Xanax. Seriously. lol
He graduated from the cardiac NICU to the step down unit. He’s been in step down for 2 days now, and he’s doing really well. We’ve had some rough patches after surgery… like part of his lung collapsing. It’s better now. But then we found out his vocal cord nerve got damaged during surgery… so he’s barely able to drink from a bottle. They’re doing some type of test on him tomorrow to see how well he’s able to swallow. He has an NG tube in right now. They feed him a bit by mouth but mostly it’s from the tube. Anyway… things are getting better. He’s at a hospital located an hour away from where we live. We have been staying at the Ronald McDonald House since last Friday. I started feeling pretty bad physically a couple days ago… I took my blood pressure and sure enough it was high as hell. 178/90. So I ended up going to the nearest ER… my bloodwork looked okay so they put me on Procardia (nifedipine) and sent me home. I’ve had the absolute worst headache for 3 days now. I called my OBGYN at home and let him know what my BP was doing… he wanted to see me in the office n asap. So I told my husband I needed to go home today. He was upset that we had to leave… and that made me feel sooo bad. I’m currently at home, feeling so exhausted, sad, drained, and guilty! I’m going back tomorrow afternoon… (I have another blood pressure check at my doctor’s office tomorrow at 2:00) but I still feel extremely sad and guilty for leaving my baby boy! And my husband hasn’t made me feel very good about coming home. 😞 Has anyone been in this situation? I had postpartum preeclampsia last year after I had my baby girl. It was very rough. :( I can’t wait until our whole family is at home together!