I used to get huge amounts of engagement. Over 50-60 likes per post. 200 plus views per story. Im down to less than half of those numbers the last 2 years.
Im from the usa. Im a male. I had nuerogenic bladder of unknown cause for 3 years now. I started having to self Catherize to keep my bladder empty.
I never had any IC symptoms prior to when I started getting catheter related UTIs. Over the last 3 years I have been hospitalized over 13 times for kidney infections and multi drug resistant UTIs. Ive had sepsis 3 times. Over 75 emergency room visits. Dozens of positive urine cultures.
Ive seen countless urologist about this. None ever helped me or had answers. Ive seen countless infectious disease specialists. None ever helped me. Ive seen 2 pelvic floor specialists. Useless. Countless cystoscopes, so much imaging and testing.
Im at my absolute wits end about what is causing my flank and bladder pain. Even whenever I dont have a UTI my entire urinary system from my penis, pelvis into my kidneys always feels inflamed. If I eat spicy or acidic foods my urine turns dark and I burn all over so bad that ive wanted to end my life from pain. Im in 24-7 pain. When I wake up, when i go to sleep..its making me go insane and lose my mind !
Antibiotics dont ever take my flank pain away or bladder pain. I have so much pain so deep inside my kidneys. None of my specialists have any idea why I hurt so bad and im always so tender.
I thought maybe it was C-UTI. But if thats true, why don't continous antibiotics do anything ? So I diagnosed myself with IC. Then I thought it was an embedded kidney infection. But no one in the C-UTI community has kidney or flank involvement. I have searched every message board.I can find online about this condition , and I can't find anyone that has a similar story. Not one. I think i'm one of the worst cases ever.
Does anyone out there think its possible ? I have all of the food triggers. Does anyone else have excruciating flank pain thats related to IC?
Ive never met anyone with kidney and flank pain from this. I just know I dont know how much more I can take..im considering bladder removal.
Any input would be appreciated..
Im from the usa. Im a male. I had nuerogenic bladder of unknown cause for 3 years now. I started having to self Catherize to keep my bladder empty.
I never had any IC symptoms prior to when I started getting catheter related UTIs. Over the last 3 years I have been hospitalized over 13 times for kidney infections and multi drug resistant UTIs. Ive had sepsis 3 times. Over 75 emergency room visits. Dozens of positive urine cultures.
Ive seen countless urologist about this. None ever helped me or had answers. Ive seen countless infectious disease specialists. None ever helped me. Ive seen 2 pelvic floor specialists. Useless. Countless cystoscopes, so much imaging and testing.
Im at my absolute wits end about what is causing my flank and bladder pain. Even whenever I dont have a UTI my entire urinary system from my penis, pelvis into my kidneys always feels inflamed. If I eat spicy or acidic foods my urine turns dark and I burn all over so bad that ive wanted to end my life from pain. Im in 24-7 pain. When I wake up, when i go to sleep..its making me go insane and lose my mind !
Antibiotics dont ever take my flank pain away or bladder pain. I have so much pain so deep inside my kidneys. None of my specialists have any idea why I hurt so bad and im always so tender.
I thought maybe it was C-UTI. But if thats true, why don't continous antibiotics do anything ? So I diagnosed myself with IC. Then I thought it was an embedded kidney infection. But no one in the C-UTI community has kidney or flank involvement. I have searched every message board.I can find online about this condition , and I can't find anyone that has a similar story. Not one. I think i'm one of the worst cases ever.
Does anyone out there think its possible ? I have all of the food triggers. Does anyone else have excruciating flank pain thats related to IC?
Ive never met anyone with kidney and flank pain from this. I just know I dont know how much more I can take..im considering bladder removal.
Any input would be appreciated..
I've been on clonazepam for 16 years as prescribed. Since age 16. Im 31 now. I swear I have developed dementia from these drugs. I've lived in the same neighborhood 6 years now and I can't remember any of the street names , except for the one I live on.
I have friends from high school.That message me on social media all the time , and I don't remember any of them. Even after they mentioned memories , we shared together
My sister shows me photos from our child hood and I don't remember any of them photos.
Hey everyone. Im not stranger to UTIs or CUTI. Ive battled many throughout the years as someone who has nuerogenic bladder and has to self cath.
I went to the emergency room recently having chills, bloody urine, a high heart rate, excruciating pain in my right side..
The dr did a CT showed swelling in the right kidney and ureter. My urine culture showed klebsiella. They told me it was most likely from infection. I called my specialist who put me on 14 days of augmentin, which was sensitive on the culture.
Over the last 4 days that ive been on the antibiotic, my symptoms haven't improved at all. I feel absolutely terrible. Im drinking so much water yet producing hardly any urine. My heart rate has stayed at about 115 resting . I started having painful bladder spasms as well. I went back to the emergency room today and everything looked great? My urine was crystal clear. Not even one white cell or red cell. Despite the urine looking awful.
My white blood cell count and lactid acid were normal. My potassium was just a little bit high. So the doctor told me that i needed to wait at least a week for the inflammation to die down and 4 days was too soon. Yet I feel no better than when I began?
Any thoughts?