u/Sirdukeofexcellence2

I believe that amongst Parkinson’s patients, as with any disease, there are people who have found tricks and quiet breakthroughs that have made a huge impact. If you or someone you know has been managing Parkinson’s long term without significant disease progression, I want to learn about your methods and your secret tips, tricks, and treatments. If it’s something you don’t feel comfortable posting publicly please send me a message. I will then conduct research on anything shared here and determine what is a good fit. My mother has Parkinson’s and I want to stop her condition from progressing. Thanks.

I believe that amongst Parkinson’s patients, as with any disease, there are people who have found tricks and quiet breakthroughs that have made a huge impact. If you or someone you know has been managing Parkinson’s long term without significant disease progression, I want to learn about your methods and your secret tips, tricks, and treatments. If it’s something you don’t feel comfortable posting publicly please send me a message. I will then conduct research on anything shared here and determine what is a good fit. My mother has Parkinson’s and I want to stop her condition from progressing. Thanks.

Lately when I sit for too long I’ll start having this feeling like my breathes are “forceful” and are yanking hard on some of the structures in my throat. After enough time of this, I have to physically get out of my chair and lay down for 15 minutes and then the feeling is gone for a few hours. If I don’t get up and reset, the discomfort gets worse and worse until each breath physically shows my hyoid bone moving up and down when I breathe. My assumption is that this is posture related, and I don’t really have any other lead for whats triggering it. It’s worth noting that when an “episode“ is occurring I will check a pulse oximeter and my blood oxygen saturation will always be 99-100, when my usual is 97-98, so I’m breathing rapidly during these episodes.

I do have forward head posture and anterior pelvic tilt. My assumption right now is that I’m sitting hunched forward and putting excessive pressure on my diaphragm which is then oddly recruiting muscles/structures in my throat to breathe.

Data point: Running or walking fast enough to start breathing heavy and continuing this for over 10 minutes is enough to flare up that whole system for several days. So I have to be careful not to breathe too hard on exercising.

Has anyone else dealt with this, or do you have anything to add?

Hi, I'm interested in reading your stories and understanding. Thank you for taking time to share, and I hope you have a great day!