u/RevolutionLive2631

▲ 7 r/MPN

FATIGUE

Hi! Im writing this to know how do you deal with the constant fatigue? Im 20 years old, female, have thalassemia and my hematologist suspects i have ET as well since over the last 3 years my platets have been rising (i have more than 700k) and my iron levels are not low. I'm waiting for my JAK2 results.
Im used to feeling tired because of the thalassemia, but i feel like im more tired each day that passes. I run out of energy at 5/6pm and its honestly so frustrating bc i want to be able to do things. The minute i come home from work its like i collapse in the couch or wherever. I cant go to the gym or run in the afternoon bc im already out of energy. I cant go out on weekends unless i napped previously. Some days i feel pretty good but most days i just feel tired all of the time.

Of course, im going to discuss it with my hematologist but im asking here mainly because of the weight it holds mentally speaking. I feel frustrated and completely powerless. Im tired of being tired and i dont know what to do. I have an excellent diet and a good (generous) sleep schedule.

I would like to know how do you deal with the constant fatigue? bc even if i dont have et i do have the thalassemia fatigue and im honestly so sick of it. I feel limited at all times.

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u/RevolutionLive2631 — 3 days ago