u/Natural-Confusion885

Around 2 years ago, I set up a PMDD support group on WhatsApp - today I'm resharing the link for anyone who would like to join us!

PMDD can be an extremely lonely experience. Arguments, isolation, guilt, and shame are all very familiar to us, and it often feels like the only people who get it are other people with PMDD. One day, I decided that I didn't want to feel that way anymore...and that nobody else should have to either. So, I set up our WhatsApp group.

Since then, we've had around 300-400 members come and go. We currently have 100 members and a range of groups within our community, spanning from rants and vents to wholesome content, memes, and a general chat.

Our group has a slightly different focus from most - we don't just want to talk about medical management or our PMDD experiences. We want to chat, laugh, and make genuine friends with people who get it.

We're gender inclusive and would love for you to join us, whatever your story is. Don't have a diagnosis? Don't worry!

Join us here: https://chat.whatsapp.com/DkiKuFkgm5ZAngGpK70658

Feel free to ask any questions in the comments below.

Hello all! As a lifelong PMDD and endometriosis sufferer, it occurred to me a little while ago that we don't have a space dedicated to laughing through our specific kind of suffering.

So...I have set up r/memestruation!

It's a place where anyone with a menstrual disorder (PMDD, PME, endometriosis, adenomyosis, PCOS, etc etc) can share & browse memes about how much this SUCKS.

Join us! ✨

Hey everyone! I'm u/Natural-Confusion885, a founding moderator of r/memestruation.

This is our chaotic corner of the internet for memes about menstrual disorders. Endometriosis, adenomyosis, PMDs, PCOS, dysmenorrhea, menorrhagia - if it feels like your body is betraying you, you're in the right place.

What to Post: Memes, dark humour, relatable suffering. If it made you laugh through the pain, we want it.

Community Vibe: We're here to cope, commiserate, and find solidarity in the absurdity of it all. Be kind - everyone here is going through it.

Get Involved

• Drop an intro in the comments
• Post your first meme
• Know someone who'd get it? Bring them in
• Want to help moderate? Reach out

Thanks for being part of the first wave. Let's make this the support group nobody asked for but everyone needed. 🩸

Hello fellow mods (and admins)..I have a strange one for you!

I moderate a large subreddit (140k+ members) focused on a chronic medical condition. A moderator of a closely related subreddit has recently self-published a book which raises several concerns I would like guidance on.

The book contains verbatim posts and comments from our subreddit, compiled without the explicit consent of the original posters. Some of the included content was posted by people who have since deleted their posts - those deletions have not been respected and the content has been published anyway. The moderator was informed of these concerns prior to publication but declined to make changes.

Since publication, the moderator has been removing any comments that raise concerns about the book and banning those users from their subreddit. The book is being promoted within that subreddit.

The book is available for purchase on Amazon (as well as other sites) as both a paperback and epub, meaning the moderator stands to gain financially from this content.

We have escalated to Reddit Legal (although have not heard back) and filed a DMCA takedown with Amazon where our content (as a mod team) has been reproduced without our consent.

Our concerns around this fall into three lines of thought...

-Copyright infringement (our understanding is that Reddit users retain ownership to their own content, as per the User Agreement and explained by this post: https://www.reddit.com/r/selfpublish/s/uDRsP4I7iv)

-Reproducing deleted content

-Creating an environment that solely promotes a product the mod owns, allowing them to financially gain from their moderator role

We have spent significant time looking into this ourselves but don't know where to go next, so we are now reaching out with the hopes someone here may.

What options are available to us? Is there anything in Reddit's Rules or Moderator Code of Conduct that speaks to this directly? What (if anything) do we tell our community members? Is there anything we haven't considered?