u/NationalCommunity519

Suspected Gastroparesis - Went away and came back?

Precursor: I have hEDS and am being treated for IBS-d (however my symptoms are more in line with IBS-cd)

So, I was being seen for severe acid reflux that eventually turned into daily vomiting for 45-90 minutes each time. I am constantly vomiting into my mouth. Some of the vomit is liquidy and some is almost completely undigested even 5-6 hours after eating said food.

I was put on pantoprazole for a month in conjunction with as needed Pepcid complete, it did nothing. I was then switched to lansoprazole. My symptoms continued to get worse so I sought my own answers as I felt my GI was only seeing acid reflux when I felt like something else was wrong. After discussing gastroparesis with her she placed me on the respective diet and scheduled me for GES.

Things got so SO much better and I was finally able to eat again and hadn’t puked in weeks, then I had my GES and had 94% food digested with the only period of observed slow digestion in the first hour. I was pissed because I had been suffering for four months and like many of the medical issues I have I thought this was going to get stretched out for ever with no answers, so I got a meal at Wendy’s and pigged out.

To my surprise, I had no problems with Wendy’s despite it previously being puked undigested atleast 3 times. I had continued to eat freely for a week until my acid reflux began returning, and just now (which prompted me to post this) I puked completely undigested halved almonds into my mouth from 3 hours ago. I was also in the ER three days ago from presumed trapped gas pain that was causing uncontrollable burping and extreme 9/10 shoulder pain.

My mother suspects this is MCAS, my friends think ulcers or celiac (which I test negative for), I don’t know what to think anymore. I feel very lost and frustrated, so I come to you guys as gastroparesis protocol is the only treatment path that has actually worked / helped so far.

Can gastroparesis disappear and come back for a week? Can a GES be inaccurate? If this doesn’t sound like gastroparesis’ nature, does anyone have next steps for conversations I should have with my GI? (I see her on the 20th) Any possible conditions or symptoms to look into and bring up with her?

TIA!!

reddit.com
u/NationalCommunity519 — 4 days ago

Hey guys!

Since Boost introduced himself, figured I might too. Much like Boost I moderate a large subreddit (or in my case a couple: r/fish and r/fishtank), but I also have experience moderating social media for close to 8 years now on various forum type sites. Just like Boost I hope to use my experience to branch into a trading community! So, In the spirit of this subreddit having a “face” or life so to speak, I feel it’s good to introduce myself to all of you.

My advice to help the community (since Boost also gave some tips):

Make sure you document everything that happens if you end up in a scam situation or an interaction you’re having begins to take a turn that worries you. That way when you choose to take it to the moderator team we can make our decisions as quickly as possible due to the clarity.

When you interact with one another (especially as a seller) remember that this hobby has real lives in our hands, plant, animal, and sometimes the atypical life as well. With this make sure you’re always putting those organisms above your own desires, or in other words please make decisions responsibly.

Thanks for helping our community! We wouldn’t have community without our members 😁

My Background as a Hobbyist:

I’ve had aquatics in my life since the moment I was born, my father being a hobbyist with 40+ years of experience. Of course I had the childhood bettas (but do these really count as experience?), but my passion for this really took off when I learned about tank invertebrates at 14. Since then I’ve had years of experience, mainly with invertebrates and (aquatic) amphibians. I also do work as an independent freshwater researcher with two pending publications and I’m pursuing a degree in Freshwater Science!

Pleased to Meet You All,

NatCom 💗

reddit.com
u/NationalCommunity519 — 15 days ago