u/Middle-Idea5457

I am a 31 F over the last year and a half I have had intermittent symptoms sometimes they have come and gone such as getting very cold, slurring my words, left sided weakness ringing in my ears, tunnel vision constant head pressure and pain, fatigue and more recently very heavy episodes of brain fog with shortness of breath as well. I have had three brain MRIs two top down and the third most recent a side and multi plane view. The C spine with a t spine, Stanford is supposed to call me early next week last I saw them they wanted more scans but said I currently didn’t fit the criteria of Ms with a negative lumbar puncture last September and my top down MRIs not really showing enough definitively of the disease. The most recent mris came back with stating demylenation such as MS. My brain fog has been horrible this past month. I can’t drive or function. The process of getting any diagnosis has been still very very slow. My previous top down only mris only stated t2 flair with minimal white matter disease.

I am a 31 year old female and I have had a chronic neurological condition ongoing for the past year and a half following an episode where I fell down in the middle of the night post stomach upset, was unable to get up eyes open seeing floating numbers and visions. Following I have had cognitive decline, slurring my words, head pain mostly on the left side but also ranging from the back of the head and sometimes a razor blade like sensation throughout with general soreness that doesn’t go away. I’ve had tunnel vision three times. I have mild left sided weakness with left sided drift. The past month I’ve had shortness of breath, with significant increase in brain fog including an episode where the brain fog got so deep I was unable to speak and began crying and the fog lasted for hours with me having a hard time speaking and feeling completely out of my body. Since this episode a week ago I’ve felt hungover every day with severe brain fog. I’ve been working with a neurologist at Stanford but everything has been moving insanely slowly. The last time we spoke she casually mentioned migraine with aura, I used to get migraines when I was a teen this is completely beyond that. I can’t drive anymore I drive in the wrong direction and get lost, I can’t grocery shop, I throw away items in our house like dishes and forks, when preparing breakfast I crack eggs in to the trash. I leave things I started constantly and the pain and discomfort in my body back head is just getting worse. I have had some clear liquid come out of my nose when going up an airplane and also when hanging my head. I’ve had mris where they found some lesioning but a negative spinal tap. I’m so lost and I don’t think I can last much longer with whatever is going on and I’m getting no help.

I also used to get severe brain fog episodes when I was in my mid 20s one where I felt drugged and my dad had to drive me home after dinner, I got confused in the grocery store a few times, and another time I was hiking with my husband and thought I maybe had an allergic reaction and felt very brain fogged and out of body experience.

This all spiked six months post partum and I’ve been trying to raise a daughter with this going on. They have only given me topamax it’s possible I hit my head when I collapsed. I’ve only ever been in one other car accident and I had a ct at that time as well.