2 years misdiagnosed, awful foot pain. Doctors now suspect rare neuropathy, not plantar fasciitis as they did
Hi! I’m a high-level inline hockey player and I’ve had severe sole, toe, and heel pain for almost 2 years. It started only while skating, but progressed to daily burning pain, numbness, tingling, and pain even at rest.
For 2 years I was treated for plantar fasciitis with no improvement. A new orthopedist recently said it likely isn’t plantar fasciitis and suspected neuropathy, so I was referred to neurology. I had an MRI with contrast and ultrasound for this neurologist and was prescribed Pregabalin 150 mg/day, amitriptyline (Anapsique 12.5 mg), and Thioctaid 1 a day.
I haven’t been able to train or skate for 3–5 months because of the pain. The MRI showed no obvious nerve compression or major nerve branch damage, but also no clear cause for the neuropathic pain, just a slight irritation in the tibial nerve region.
My neurologist now suspects a possible rare genetic neuropathic disease (can’t tell which one and don’t have information bout my family, I’m adopted), and mentioned that if medications help, I may return to training, but a biopsy could also be needed to identify the cause.
Today Sunday 10th may I’ve reached 1 week on this medications doses, feeling a little improvement but still not feeling ready to skate and play.
Has anyone experienced something similar? Especially skaters/hockey players with neuropathy-like foot pain? Did medications help enough to return to sport?