Hi I’m 24 years old with DILV, along with first degree heart block and pulmonary atresia. 3 OHS’s/fontan (last done in 2004) Trying to look at the positives for the future but my life has been nothing but hell since birth and I’ve been unemployed the past 5 months and I’ve just been thinking a lot about my condition more than ever, especially the older I get all the complications I will possibly face. My CHD (single ventricle) post fontan is one of the worst apparently and I could possibly develop liver failure, kidney failure or PH, have frequent arrhythmia, and eventually a transplant. I honestly didn’t even know post fontan was just a “fix” I thought it cured it but I guess I was ignorant of my own condition partly due to the fact that I’ve spent most of my life trying to ignore it so I that I can be normal. It now occurs to me nothing about me is normal. Nothing will ever be normal, no matter how hard I try. I don’t want my condition to get the best of me so if things start getting worse I might just end it. I’m so sick and tired I got a lot of other shit I’m dealing with my childhood wasn’t the best both my parents were shit and I don’t think a lot of people with CHD have faced this unique problem especially since I went to a place called camp Del Corazon and every else’s parents just seemed so involved and financially stable. Im screwed in every direction and honestly at this point It is what it is I just wanna know. (If anyone else has DILV) please reply. Also…Went to cardiologist 3 days ago he told me he saw some pressure but did suggest that it could’ve been from my anxiety of going to the cardiologist…also I’m 5’7 183 pounds it can also be my weight which I’m trying to lose but nothing good has ever occurred in my life especially the past 10 years, honestly ready to go just wanna know how much time I got left. Unfortunately I’ll never get to experience decent parents, a girlfriend, traveling all the normal things a human being has, but there’s wars happening across the world anyways it is what it is. Cardiologist put me back on medication (lisinopril) (10mg this time) after 3 years of no more meds, and he’s my pediatric cardiologist after 11 years he said in 6 months I’ll be seeing an adult one….oh boy just more bad news. I also don’t want a transplant. If it’s my time it’s my time. I don’t even want to do a heart cath either. Just somebody let me know, thanks.
u/Lucky-Afternoon-95
Hello everyone, throwaway account for obvious reasons, but I think at this point, I’m just totally fatigued of living here in the HD. I honestly have been for awhile but I’m down the hill right now with extended family and there’s way more job opportunities than I could ever imagine (OC area) where I was born and raised for most of my life till I moved up here in 2019, for personal family reasons senior year of HS. It’s been the same shit for the past 7 years with little to no advancement in my life. I’m 24 currently unemployed and at my breaking point I can’t stay down here because nobody would be willing to take me in. For every job up here even entry level like a fucking McDonald’s you got a 1,000 applicants, there’s no night life for someone my age I feel like my total young adult life here has been completely wasted, no decent women to date most people are ghetto as fuck up here and I’m sorry that’s just the blatant truth. Either you’re dealing with single moms or women who are just very ghetto or both. It’s absolutely insane. I got no money. I dropped out of VVC due to depression, no job, no money, no degree, no gf, no social life, nothing. Thinking about just living in my car for awhile down the hill if I have to or getting into drugs which is what most people here my age do anyways at this point I can’t even blame them, this place is depressing as fuck especially if you’re a young adult just trying to thrive. I have other reasons I need to get the fuck out especially for my health but that’s most of it.