Looking for advice
I posted this on the ENS subreddit the other day, and thought I'd see if any other folks might have some suggestions over here:
Hey, first time poster here and I'd love some advice.
So, I was historically a mouth breather my entire life, up until Sept 2022, which I had a septorhinoplasty (also had submucosal resection with lateral out-fracture). My septum was extremely deviated and one side of my nose was more or less entirely blocked prior to surgery.
My nose was very large and the surgeons felt that my dorsal hump was pinched at the top, further impeding my breathing. So, they ultimately shaved the hump down and used the excess cartilage to create a sort of make-shift breathe right strip. They also used grafts to strengthen the tip of my nose, as I also had nasal valve collapse on the left side. Additionally, as mentioned earlier, my septum was extremely deviated, so they moved it pretty far over to the left. Surgery was long, but went well and my QOL improved tremendously for about a year and a half.
Spring 2024 comes around and I catch COVID for the first time. After a few weeks, I recover and I went outside to weed-eat my backyard (I had just had a large tree cut down a few days prior). Shortly after starting, I clipped a large piece of mulch, which flew up and hit me pretty hard on the bridge of my nose.
After this, I noticed that where there used to be two little bumps inside my nostril (from the graft at the tip), was now a fairly large, rectangular piece of the graft that sticks out a bit. Also, though perhaps it was always this way, I noticed a small spiky bit of cartilage at the base of my right nostril (presumably where my septum used to connect).
Either way, not long after, I develop an issue where I feel a constant, and I mean absolutely constant sense of pressure/squeezing/clamping sensation at the bridge of my nose (right over the nasal bone). It never, ever stops, though it's notably worse when I bend over and when I'm lying down and turn my head side to side.
I eventually see both of my surgeons, whom do nasal endoscopies on me and find nothing of note. I then see a neurologist for months, though he ultimately has no ideas as to what could be the cause.
After trying gabapentin (900mg nightly) for months, I discontinue use as it didn't help. I also end up trying astepro, budesonide saline mix (2x a day for months), and ipratropium (does help with the chronic runny nose, but not the congestion or constant pressure).
I go back to my ENT and he orders a facial CT. It's normal besides the fact that my right turbinate is hypertrophied (may be inconsequential). I see him in office again and he scopes me once more. He notes that my right turbinate is quite swollen, and nearly touching my septum. He suggests we repeat the submucosal resection with lateral out-fracture, but notes he's not certain that it will be a permanent solution. He added that it's very uncommon for him to need to do the surgery more than once, and that I had some type of white, frothy substance in my nose (it didn't look like mucus). He suggested that I may have some type of autonomic issue, as my nose very frequently drips, too (much worse with eating and temp change).
After this, I try 10, then 20mg nortriptyline for 2-3 months, but it doesn't help. I realize, however, that's a low dose, but the GI side effects were just too difficult to deal with, at least for me.
This brings me to current day: I feel like I've nearly exhausted my options, yet I still don't even know exactly what's wrong with me. I don't know if it's some type of post-viral autonomic issue that or possibly a physical injury that resulted in some kind of nerve damage. I've read more and more about ENS, and I do take it very seriously. I don't want to have to get this surgery again, but I feel I'm running out of options.
Based on what you all know, does this sound like more of a nerve issue or an autonomic/vascular issue? The only other plan I have right now is to try an SNRI like cymbalta, but that's about all.
Again, this sensation around my nose is legitimately unrelenting. It's been 2 years of constant clothes-pin like pressure, and I'm just very, very sick of dealing with it.
Any advice or info? Also, apologies for the long post, but I wanted to be thorough with my story-- thanks for reading.
I forgot to mention, I also ended up having a brain MRI via neurology, and that was normal as well. Also, I probably should've mentioned: my right turbinate is indeed swollen much of the time and I'm very often congested on that side of my nose, even now.
Another note at the end here: my ENT surgeon did mention that he's able to do posterior nasal nerve neurectomy (intra-op division of the posterior nasal nerves). He also noted that he here's microdebrider for SMR.
Also, even when I take afrin and iptratropium, while the runny nose and congestion improve, the constant pressure on the bridge of my nose is still present-- it's just not as intense.
Sorry for the very, very long post, but it's been a long two years-- with that said, any thoughts?