u/Justwaiting121211

▲ 5 r/DoctorsAdvice+1 crossposts

I have pernicious anemia but some things aren’t getting better

So I got diagnosed at 22yo with pernicious anemia after going to the hospital because my legs stopped working and i had terrible pressure behind my left eye, they first diagnosed me with MS but the MS specialist i went to said no no no thats very wrong. My b12 was at 116 and my ferritin was at 6. I had to have weekly b12 injections and iron infusions and now im 25 and inject myself monthly. Heres my problem i still have terrible symptoms that didnt get better… and i dont know what to do. First off my numbers monthly are awful, i inject and go up to like 600 and then am back to 200-300 at the end of the month, I saw an eye doctor because i lost my peripheral vision and turns out my ocular nerve is paling… my muscles cramp up and i disassociate really bad when its almost time for my injection… I also feel like im suffocating and dizzy ALL THE TIME its awful, i get like 1 week of feeling good and then im suffering again, why isnt it getting better and will my legs and fingers ever work right again, will my ocular nerve ever get better? What do i need to do… oh and im also VERY tachycardic like resting heart rate of 100 laying down, and up to 150 when i stand. Please help. Im just want to be healthy again :(

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u/Justwaiting121211 — 13 hours ago