u/Jazzlike_Berry_323

Hi, I have been thinking about the ‘capacity building’ principle of reduced support over time and sudden drops in funding. My question is how secure is SIL/SDA funding package long term once it’s been approved. Especially for people with stable cognitive or developmental disabilities likely to need continued SIL/SDA over their lifetime, my question is whether the package item is actually continuing year after year for those eligible.

Are participants getting SIL then losing it within a few years when their functioning is actually not improving except in the eyes of the NDIA, not the participant and their care team. If yes, what happens to them to prevent homelessness and risk due to unmet support needs?

Like many who had an abusive mother, Mother’s Day is a s*** day to get through.

Why should one of the most selfish people in the world be forced into my consciousness, valorised and whitewashed from a hundred different stimuli reminding me to happy thank gift my abuser.

Tomorrow it will be Monday and it will all be over for another year.

When I was growing up TV viewing was discouraged as bad for the brain, too passive an activity to stimulate the brain.

When I think about it as a rehab tool I think my brain ‘might’ benefit by following dialogue and eye tracking of screen movement like car chases.

Curious whether people have heard things in therapy or personally experienced a) finding tv helps their brain b) being advised to avoid/limit tv in therapy

Hi, So this has been an important part of my journey. Unless you are an alcoholic, in most cases you will not get tested for B1 (thiamine).

If you have massive ongoing anxiety, here is why you might consider getting a blood test

1. intense stress depletes thiamine

2. symptoms of thiamine deficiency can include anxiety, paranoia, confusion, delirium

3. if your nutrition is poor or you have poor nutrient absorption (such as celiacs IBD pernicious anemia) you have a higher chance of the deficiency.

4. if you are on mental health meds these can increase vitamin requirements

5. anyone diagnosed with schizophrenia or extreme anxiety such as occurs in cPTSD could have a thiamine deficiency and doctors don’t tend to check this (it is an under diagnosed deficiency)

I didn’t get tested but I have been off and on thiamine as my nutrition is not the best. I don’t get more energy but I get less anxiety and less confused/blurry thinking on it. It’s not a cure but I’m better on it than off. Maybe this might help someone else out there who reads this- thanks for reading.

Just need to share that my relatives are moving from being simply apathetic about whether I get treatment for brain injury, to actively discouraging and dismissing that I should have any. The abuse is making me want to suicide again and that’s the whole point. I need care. They want me dead so they don’t have to offer any. I wish this was a crime that society cared enough to prosecute, it should be.

Hi, Have had 1 mild ABI (deep brain). Part recovery. Then 2 more mild TBI. My head feels like it has 'maxed out' it's recovery mileage and not making gains but I don't know how much of this is true or how much is morale after having to do this a third time.

MRI showed my first TBI but not my others, and CT showed nothing. I can't get a SPECT in my area, nor fMRI or diffuse tensor imaging to show less obvious markers of TBI. So I went and got a quantEEG to try and get diagnosed, once and for all.

My qEEG feedback appointment was disappointing as the analyst said they can't diagnose anything just point out patterns. But do propose treatment for the patterns.

Just looking for feedback on:

-is it standard for a qEEG analyst to 'only point out patterns rather than diagnose' or did I go to the wrong clinic?

-how much improvement did neurofeedback give you and how did that compare to other therapies/treatments you tried like hyperbaric or TMS?