I need some help, any help 🙏
Hi all, I'm coming to the type 1 community I'm not sure where else to turn at this point.
A quick brief:
Thought i was diabetic, dr said no, 1 year later opticians(retinopathy test) said you're diabetic and have been on the register confirmed diabetes for 1 year. Dr says oops, eat more cabbage.
Change dr, dr says you need meds. Take meds. No work.
Move cities, change dr. Dr says hmmm, let's try all the oral meds. 18 months later and hba1c every 3 months diabetes is sitting consistently 16mmol - 24mmol. Med no work.
Dr say hospital for special care and type 1 test. Big dr say no type 1, must be type 2. Mounjaro for you!
Monjouro make me really sick for 6 weeks. Migraines really bad. Took time off work.
Meds start working really well. Side effects some what manageable.
10.5 months later meds not working as well, dr move to insulin suspect MODY and will test.
Now I'm 3 days into insulin and feel like i know nothing awaiting MODY test.
I've been told have 2 units of fast insulin 15 minutes before food, 2 units of slow insulin before bed.
My sugars are sitting 9-14 mmol. It does eventually drop but after eating it takes 3-4 hours for it to drop.. I feel like hot garbage.
Injecting is fine, the insulin STINGS.
Fasting sugars high, I don't seem to go down very well on my own. I knew this before and told dr and they said see how you get on??
I'm just not sure what I'm doing with this insulin business.
If I'm injecting when I eat meals and I'm still high?
I want a snack but I'm high? Told no insulin for snacks?
No insulin unless I'm eating?
Skip insulin if I skip a meal?
4 injections a day.
Exercise sky rockets my sugars.
Waking up sky rockets my sugars. I can be sat in range, the moment my feet hit the floor BAM high alert.
I'm on a dexcom (so far great better than the libre).
It says so far in range 53% but that was 50% last night.
How am I supposed to know what insulin to take for what food?
Dr said i will need to manage this all myself and I'll know what insulin to take when and its my diabetes I know it best?
I'm just over here winging it? I took 4 units for a bowl of cereal, protein cereal as a treat because I need to finish the box up but I just know I'm gonna feel like crap and have yet another bordering migraine because I'm high. Do I inject more? Already had to inject this as 2 2unit doses because it stang. I'm just so confused.