u/Hot_Cook_9661

▲ 13 r/focalawareepilepsy+1 crossposts

HI,

I'm sorry for a long post and my not so good english, and TIA to anyone who reads it.

I'm curious because I'm currently trying to figure out if my experience could be focal aware seizures.

I first started having these weird episodes a little more than a year ago. Here's examples of some of them:

  • I'd be out with my friends and suddenly start having this weird feeling of confusion and things would feel out of place like jamais vu. I'd also experience this feeling of getting light (I don't remember if I felt "butterflies" in my stomach back then) but I wouldn't really feel anxious prior to that so I doubt it'd be the cause. It'd last for a short time like couple of seconds, then stop, and maybe 10 minutes later repeat. Of course after that I got a bit freaked out not knowing what's happening. Afterwards I felt sensitive to stimuli like light, sound etc., everything felt weird. I got home and tried to sleep it off, but couldn't fall asleep.
  • Days later I felt foggy but better, then out of a blue I'd again experience this feeling of confusion, dissociation and jamais vu where things felt alien to me. It lasted for maybe 5 seconds, and after that I'd just feel foggy and mentally tired.
  • Later that month, at work it happened again but this time it was much stronger. I felt butterflies in my stomach and chest, and also tingling in my head + this feeling of very uncomfortable euphoria which would turn into anxiety. Everything around me felt weird, like a vivid dream. I'd try to shake it off and calm myself. I went on my break and tried taking a nap in a safe place away from people but couldn't fall asleep. Everything around me was so stimulating. Light, sounds, people. I felt as if the more I tried to comprehend what was going on around me, the more confused and anxious I got.

Thing is. It lasted for about 2 more hours or so, until I got off the work, and from what I've read, it shouldn't last that long so here's my doubt.

I'm wondering if it was just ol' plain panic attack or maybe I just didn't have a chance to really calm down after the episode (stressful job).

Since then until this year I became more and more anxious, depressed, and agoraphobic. I tried getting psychiatric help but it didn't really help. Probably because I wasn't that anxious prior to these episodes but rather because of those episodes that kept happening and I didn't (and still don't) know what would cause them in the first place.

I've made many different tests like mri, blood tests, vitamin deficiencies, tickborne diseases etc. Nothing conclusive. I tried taking antidepresants which seemed to make things worse so I stopped.

Here I am today trying to figure out what would be the cause and kind of starting to doubt myself because those psychological symptoms became so chronic and mixed with those episodes I'm having a hard time telling one from the other.

Does my story sound familiar to anyone? Any help will be greatly appreciated!

edit: forgot to add but I'm also having some physical symptoms like this weird tiny spot of light in my view for a brief moments (like eye floater but it's more as if someone was flashing their flashlight from a very far distance) that I see from time to time, and feeling of tingling along with burning sensation in my head, particularly forehead area, and general fatigue.

edit2: I'd also experience this in a sleep, where I'd awake in panic and confusion not knowing where I am, or while falling asleep I'd "awake" being confused and not being sure what happened or if I even was asleep to begin with, accompanied by jamais vu.

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u/Hot_Cook_9661 — 10 days ago