What the heck is happening to me
Backstory:
I’ve had strange “episodes” for years, chalked it up to disassociation or something related to my bipolar disorder. Never followed up, husband begged, end of 2024 I went to a neurologist. Got diagnosed with “seizure activity”, put on therapeutic dose of lamictal (which worked out bc I knew I reacted well to it in the past at lower doses with mood stabilization).
This ended up helping a lot….for a time. Had a very small handful of episodes, nothing compared to the frequency of before. Bumped the dose once a few months ago, thought I was golden!
October 2025: major personal life event kickstarted (not health related, emotion-related) and it’s caused a tremendous amount of stress and adrenaline and heartbreak. Just recently things kind of “wrapped up” (trauma with close family member) so ive been processing all that. Idk if it matters it just feels like important context that I’ve been under a ton of stress.
Had two of these “episodes” or supposed seizures in the last two months, mild. Kinda slept them off.
Then this weekend, disaster struck. Was feeling off, like kinda headachy and weak and couldn’t quite think straight. Stupid me just wanted to get home from work. It escalated, a cop actually pulled me over. Of course they thought I was drunk I was acting so out of it. But my family came, explained my history, ambulance came to take me to the ER. I had a very bad panic attack in the ambulance. At the ER my blood and urine obviously showed no substances. BUT they told me it also showed that I had no sign of a seizure????? And they did an EKG, just kind of elevated heart stuff maybe due to the panicking.
Obviously following up with neuro tomorrow since they’ve been closed for the weekend. I’m lost, confused, scared. Is it even a seizure issue if it was just noted as “seizure activity” in the past? What else could it be?? The episodes are like:
-confusion
-slurring kinda
-loss of memory or just cannot follow a thought
-exhaustion after
-sometimes motor skills get funky, or at least I get shakey/trembly
-very very veryyyy anxious and upset and sometimes agitated as hell but mainly very freaked out
But I’ve been manic of course in the past, I was diagnosed with bipolar 10 years ago, it’s so different from that. I’ve also had psychosis before and again that was very different. And this has only been a worsening thing in the last few years…..
Any other ideas? Any tests/labs I should really push for since I’ve done an EEG and MRI? The original mention in 2024 when we got the “seizure activity” info was maybe focal seizures. But it’s scaring me that the blood test in the ER showed no signs of anything like that.