Post-embolization issues
Background: about 6 months ago I woke up in the middle of the night, peed, and then tried to go back to bed. But then the worst cramps of my life came on and had to take muscle relaxers for it to go away. Happened again the next night. This was right at the tail end of my period. Didn’t happen again until my next cycle. The next cycle, happened again except the pain was in my left side, throbbing into my back and leg. Trip to the ER and many scans and doctors visits later got diagnosed with PCS. My IR scheduled an ovarian vein embolization. The month leading to it I had the same excruciating pain happen usually at night for 2-3 nights in a row after my period.
Post-OVE: I had my embolization 15 days ago. The first 7 days I had minimal discomfort, but then my period hit. For the last 8 days I have been uncomfortable around the clock, hitting a peak at least once a day with cramping of some sort and throbbing pain into my left side. My new symptoms is that my bladder burns and so does my urethra. I went to urgent care but tested negative for an infection. I called my IR, who via his nurse said that since I didn’t feel pain right after the procedure that it’s not from the procedure and to go see my gynecologist. I saw my gyno and they were quite confused why the IR wouldn’t try to help me. The gyno couldn’t do anything except prescribe me Rx strength Azo, which gave me the worst headache and nausea.
I’m now worried that this is my life now. Always feeling pain, having what’s seemingly cystitis, and no one will help me.
Is there a light at the end of the tunnel?