u/Federal-Item-8443

▲ 1 r/MCAS

Flying with cromolyn

I’ll be traveling with cromolyn, and will need to keep it cold for about 8 hours (I get mine compounded, not sure if the commercial version is shelf stable, but mine needs to stay refrigerated).

I’ve tried googling ways to keep medication cold for traveling but am quickly getting frustrated/overwhelmed.

What solution does everyone here have?

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u/Federal-Item-8443 — 2 days ago

Hello everyone!

We're venturing into the world of fresh, locally raised meat, and have discovered that cooking it isn't quite the same as meat from the grocery store- for example, we tried roasting a fresh ham, following a recipe, and after 2 hours it was shoe leather (it was an 8 pound ham). It tasted ok, but was waaaay overcooked. We've noticed that the chops and the shoulder roasts also cook a whole lot faster than the various recipes say they should.

I don't remember the exact recipe, but I do know that we rubbed it with some salt and pepper, put it on a roasting pan with water in the bottom, covered it with aluminum foil, and cooked it at 350° F (I think).

So now I'm hoping the chefs of Reddit can help us learn how to cook these fresh, uncured hams in a way that makes them tender and juicy, not shoe leather. The breed of pig is kunekune, if that makes any difference!

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u/Federal-Item-8443 — 7 days ago
▲ 7 r/MCAS

I'm newly diagnosed with MCAS at age 39, but looking back, it's been there my whole life. The flare that forced a diagnosis started in January and hit it's peak in March; I couldn't even drink water without going into anaphylaxis. The ER docs would pump me full of IV Benadryl, offer me an Ativan, then send me home. When I asked for a tryptase to be drawn, the nurses would say "we don't do weird labs".

I'm 5'8" and down to 109 pounds. I can safely (most of the time) eat four foods: an elemental powder, basmati rice, lard, and sometimes applesauce (which tastes like candy these days). IgE testing shows that I have no true food allergies. I miss food.

I have to find silver linings, though, otherwise I'll lose my mind. In March 2022 we were in a major car wreck; rear ended by a semi at 65 mph while we were stopped at a red light. I suffered a TBI (no kidding) that left me with constant migraines, double vision in my left eye, intermittent hearing loss in my left ear, chronic fatigue, and balance issues.

Since starting MCAS treatment, my migraines have stopped. My vision has cleared. The hearing loss has stopped. The fatigue is better. I'm tired, yes, but the bone-deep fatigue has abated. All signs point to significant neuro-inflammation that is now being addressed!

I take fexofenadine 180mg 2-3 times a day, famotidine 20mg every morning (twice a day was giving me major heartburn), ketotifen 2mg before bed, and will be starting cromolyn here soon because trying to reintroduce food is still a nightmare (but at least I'm not going into anaphylaxis over a bite of chicken anymore). We've done air quality testing to rule out mold, pitched every scented product we could find since our TVOC came back high, and I've taken up Tai Chi since I can't weight lift again yet.

I tell myself that this will go into remission. I hold on to the hope of eating a hamburger and fries again. I see myself coming out of this better than when I went in. I remind myself that despite the intense frustration of not being able to eat what I want and strong food smells causing reactions still, I am improving.

I don't have any big revelations to share, just that I have seen some good things as a result of a flare that almost killed me. We have to hold on to the positives.

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u/Federal-Item-8443 — 8 days ago

God I miss their diaper balm. It worked wonders at preventing diaper rash and chapped lips (different tubes, I promise).

Does anyone know what the ingredients were? All I remember was emu oil and that it smelled like lemon bars.

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u/Federal-Item-8443 — 12 days ago

Hey everyone!

We live in an area with very little moisture and rock hard, dusty ground, and my Arab has central sulcus cracks that are creeping towards his skin. I’ve had diaper rash cream recommended to treat them, but the thought of putting sticky zinc goop on him isn’t very appealing. There’s no sign of infection or thrush, and I’m wondering about just putting drops of jojoba oil on those areas. Has anyone tried this?

reddit.com
u/Federal-Item-8443 — 12 days ago
▲ 1 r/Horses

Hey everyone!

We live in an area with very little moisture and rock hard, dusty ground, and my Arab has central sulcus cracks that are creeping towards his skin. I’ve had diaper rash cream recommended to treat them, but the thought of putting sticky zinc goop on him isn’t very appealing. There’s no sign of infection or thrush, and I’m wondering about just putting drops of jojoba oil on those areas. Has anyone tried this?

reddit.com
u/Federal-Item-8443 — 12 days ago

I’ve been using CeraVe AM Daily Moisturizing Lotion with SPF, and find that whatever chemical sunscreens are in it really irritate my eyes when I sweat. I also despise mineral sunscreens- the texture, white cast, how it dries out my skin, all of it.

I used to use a Japanese brand called Skin Aqua (I think), the product was called skin milk or something, and I loved it but can no longer find where to get it in the US.

What might be causing my eyes to burn from the CeraVe, and what FF/hypoallergenic face sunscreens do everyone recommend?

reddit.com
u/Federal-Item-8443 — 19 days ago