u/Extension-Button5849

Hello all, I (27F) was first diagnosed with IBS around 5 years ago when my colonoscopy and endoscopy came back normal.

My OBGYN suspects I have endometriosis. I was so confident that I had this until I looked more into pelvic floor dysfunction.

What I think caused PFD: My anxiety has always manifested as the nervous poops which would sometimes cause me to be late to functions or school. They never were painful though. It was just the feeling of having to go. Fast forward to high school - this is gonna sound crazy, but sometimes the teachers wouldn’t let you use the bathroom. It’s so easy to think back and say who tf cares, just go anyway. However, my father wasn’t so nice and long story short I was terrified to disobey authority. So going when I had to go wasn’t really an option for me, and holding it in school was painful. So basically every morning before school for about 2-3 years, I strained on the toilet for 10-15 minutes even if I didn’t have to use the toilet.

Constipation: At around 15, I started to get what I would consider my IBS flare ups. Basically I will be constipated for so long or do little/incomplete poops throughout the week. Like rabbit size lol. Or flat, like bristol type 1-3. Then in the brunt of my flare up, I will go from bristol type 1-7 in one sitting. It’s like my body can’t hold anymore so it has no choice but to come out.

Flare up pain: It feels like my colon is contracting. in the brunt of the contractions I can’t move or breathe I just have to freeze. This goes on until I finally empty out with bristol type 7. The cramping in my intestines feels like there’s so much gas I’m going to explode, sometimes the poop feels sharp traveling through me, but mostly it’s intense aching and cramping as if someone is twisting and squeezing my intestines. I will have a vasovagal response to like nearly faint, get the sweats, my vision will start to fade, I’ll have to manually breathe, all that fun stuff. Sometimes my flare ups will last 15 minutes, sometimes a few hours.

As for my periods, they have always been painful. I had to go on birth control at 14 because I couldn’t be in school from the pain. They’re also long and heavy flow. Every period like clockwork, I get this exact recurring pain on my lower left abdomen and painkillers don’t even budge it.

I also had sex around when I was 19 years old and never again! Idk if you can even say I had sex. He couldn’t even get it in, it was like a brick wall and absolutely excruciating. I also spotted for 3 days after. At first I thought it’s because I never did it before, but we tried about 5-6 more times and it was the same outcome each time + the spotting for a few days. I could never put a tampon in either.

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I feel lost. On one hand I’m like, I have some symptoms that could totally be endometriosis. On the flip side, I know straining for years could’ve caused all of this.

Transvaginal ultrasound: I had a TVU a few weeks ago and it looked normal EXCEPT I had bilateral immobile ovaries.

I am unsure if PFD could cause this. It literally says in the report they were both non mobile. But nothing else was? The ultrasound was fine for the most part but when the technician nudged on my ovaries it started to feel uncomfortable and it made me tense. I’m not sure if this could be endometriosis tethering my ovaries to another organ, or if it’s really just because my whole pelvic floor is tense. But again if that was the case could a tense pelvic floor cause just the ovaries not to move?

Another thing is I noticed my symptoms got worse when I went off birth control. But I know PFD could cause worsening periods 😭

I’m sorry this is a long post and idk if anyone will read it lol. I just want to know other people’s experiences whether you have endo, IBS, if you’ve had a TVU and what they found on it and if anyone has a similar experience or symptoms.

I am currently only diagnosed with IBS and see an endo specialist next month but I’m really wondering if it’s just PFD.

Just wanna know where everyone’s cramping is located. Whether it’s flare up pain or dull aches, is it in always in a specific spot for you? Is it random?

I’ve always been told all of my problems are IBS-C, but my OBGYN now suspects that I may have endometriosis. During my transvaginal ultrasound, I had a negative sliding sign (bilateral immobile ovaries) which could mean they’re stuck to another organ.

My cramps are always in the same spot and sort of radiate out but usually I will get awful sort of hot twisting intestine cramps during a flare up near where my ovaries would be. It’s as if a blockage has been made in my intestines and gas can’t get through and it just backs everything up in my system and nothing can pass! It’s hard to poop and fart. And even when I’m not having flare up pain and am just having those weird dull achey pains, it’s always in the same spot (where the ovaries would be) although it’s more prominent on the left side, where the sigmoid colon would be.

When I took miralax, the consistency was mushy/borderline watery and I was able to go, however I still had cramping when I had to go. It just didn’t last as long as my usual flare up lasts because I’m usually constipated so it takes a while for it to pass.

I’m seriously wondering if I’ve even had IBS-C this whole time? At this point I wouldn’t be shocked if they told me my ovaries are stuck to my colon narrowing the space.

Hi all (: I have 2 questions that are unrelated but thought I’d ask them both in the same post so I’m not clogging up the subreddit

1. I was referred to a gynecological surgeon who does robotic assisted laps instead of traditional laps. Is the recovery with the robotic surgery worse? better? about the same? Does it make it easier to see endo/adhesions/organs stuck?

This would be an investigative/diagnostic laparoscopy as I’ve not been diagnosed but OBGYN highly suspects it due to symptoms and other findings which leads me to my next question.

2. The doctor told me I had bilateral immobile ovaries diagnosed via transvaginal ultrasound. She told me that hopefully I can have my laparoscopy by July, however I’ve not had an MRI or CT scan and I know that takes about another month or 2 of waiting + getting results.

Has anyone not had to get an MRI or CT scan before their lap? I know many people here have had more than a TVU, they’ve usually had CT scans and an MRI before laparoscopy. But due to bilateral immobile ovaries, I’m wondering if they can just skip the extra scans and go straight to the lap due to highly suspecting it already.

Thanks :D

Hello all! I’ve posted in here before about my symptoms and how I’ve been suspecting endo.

Today I had a transvaginal ultrasound which looked normal, however I was told both of my ovaries were “immobile” or didn’t really move. The doctor told me this could be because of endometriosis. I’m scheduling for a consultation with an endo specialist that they referred me to tomorrow.

Has anyone had similar results with an ultrasound and do you have endo?