u/Express-Friend-6428

I’m 29 and I’m just now realizing that I have a lot of hyper-mobile / double jointed parts of my body. I can also audibly crack all of these specific joints, repeatedly, like non-stop if I wanted. The elbow is the worst, it like crackles and pops and makes a grinding noise (I used to love grossing people out with it). I’ve even show that to doctors before and they’ve just said “don’t do that”. Nobody has ever really mentioned any of my hyper-mobile joints or anything. I’d get little comments here and there. I was recently asked by a massage therapist if I was hyper-mobile as she pointed out the crazy weird way I was sitting with my legs/feet all twisted, which is what lead me to start questioning.

Anywho, The first two pics include one pic of me posing straight/normal and one of me standing with my knees locked, for comparison lol.
What do you guys think? Does this always equate to EDS? Are there any benefits to getting diagnosed with this, such as easier/better remedies/medicines? What kind of doctor would you even ask or see about this? I feel like doctors don’t give a shit and/or won’t take me seriously. I had an ER doc say that I “probably just fainted” after a grand mal, and another doc told me the symptoms from my seizures were actually from “something else”(and then never elaborated? lol). Idk, I think the medical misogyny I faced throughout my epilepsy diagnosis really left a bad taste in my mouth. I think my neurologist does the best he can, but specialist doctors are super overworked and overwhelmed with patients.

This picture has been haunting me for days. The way my legs are going in different directions like that is so off-putting lol. Like why do they look like that lol

I turned the pics black & white, then added the color back to my eyes.
Also my eyes are soooo sensitive to light I was seriously fighting for my life taking these pics omg lol.

I’m actually kind of flabbergasted by it. not a single spot on my eyes will show up as blue on any of these color identifier apps. They look slightly different depending on the lighting, but even then, they still show up as grey?!!