u/ExistingAd3115

Hi, everyone.

We’re trying to get ABA therapy for our child who does have a valid AuDHD diagnosis. He has received speech and OT over the years that was processed through our primary PPO plan. Those therapy codes were a simple office visit copay, nothing too unaffordable. However, every facility we go to for ABA therapy is charging the code in time units, which means we have to pay the office visit copay plus 20% of each time unit charged. All of the facilities we’ve gone to have been in network, but even though they participate with our plan, our copay would be about $300 a day minimum. This is completely unaffordable.

I’ve looked into Medicaid for him but from what I see online, we are over the income limit. But I’ve had other people tell me that because my son has special needs, he would qualify.

However, the “no out-of-state coverage” is stopping me from applying. All of our family and friends that we visit are out of state and I worry about that one time that something catastrophic could happen while visiting.

I’ve tried calling to get more information but they won’t tell me anything unless I apply. I work in the dental field, specifically with dental insurances, and I do see some people come in with a primary PPO plan and Medicaid as their secondary. I kind of thought that wasn’t legal…? But if it is, how would I go about getting that set up for our son? How does insurance coverage and coordination of benefits work?

Also, I’ve had someone try to tell me that there is a law in New Jersey that forces insurance companies to make autism therapies affordable for families. My insurance (Horizon FEP) told me that doesn’t apply because the plan is based out of D.C. Anyone have any information on that?

This has been going on for almost three years and it’s hard to watch my son fall behind because of this. Thank you for reading this and thank you for any information you can provide.

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u/ExistingAd3115 — 10 days ago

We have been trying to get ABA for our son for years. Insurance is the biggest issue - the copay for just one day out of the 5 days they want him in sessions is over $200. We’re trying a facility that was recommended to us by a family we know because this facility will do shorter sessions, which would mean a lower cost to us. We had a tour and gave them our insurance info, and they told us they’d reach out to schedule the initial assessment after our insurance pre-authorization comes back. It’s been 3 months and they have not returned any of my calls or emails. I finally got a response from someone the other day saying the after school programs are on hold until further notice. I responded saying that we would like to do in-home sessions (which they offer) and I asked if that changes anything. They said those sessions are on hold as well, and that they will send a pre-authorization once they start back up. I can’t help but feel like they don’t want to bother with us because we can only afford 1-2 days of 1-2 hour sessions a week. I tried to tell myself that maybe they’re short staffed. But them having ignored my communication for months and not even sending a pre-authorization makes me feel like we’re not worth their time. Anyone else deal with this?

reddit.com
u/ExistingAd3115 — 16 days ago