Hello everyone. I am 28F in the US. I have had the worst 40 days of my life. I’m feeling very isolated internally but truthfully I have a great support system of family and friends. I just had TURBT 4 days ago and I’m not feeling better and want to put my story out there if some soul that has a similar experience.
Over a month ago, I was in line at security at the airport and I had a sudden, overwhelming urge that I was going to pee myself. I made it to the bathroom, voided, stood up and thought to myself “something isn’t right”. I sat down in the terminal and the feeling that I couldn’t stand up or I was going to pee myself returned. I ended up missing my flight and went to Urgent Care to get UTI medicine. Over the next two days I had a near constant tingling/irritation in my bladder but I rebooked my flight anyway. I arrived for my next flight and it happened again. Terrible, overwhelming urge to urinate. This was the first time in my life I have felt this sensation.
I got my UTI culture back and it was negative so I went to the ER because I was still experiencing a constant discomfort. No pain at all ever. By every metric, I am a healthy 28 year old female. Blood tests, CT scan, ultrasound, STD test. I was then referred to urology.
At Urology, I saw perhaps the worst physician I’ve ever had the displeasure of interacting with. He came in, asked me no questions, looked at my hospital records, prescribed me TROSPIUM and said come back in 4 weeks. The appointment was under 10 minutes. I cried…a lot after that. I ended up calling the clinic back asking if that was the regular standard of care as I haven’t been able to leave my house in two weeks for fear of peeing myself. I was given a second appointment with a female physician. That appointment went slightly better than the first. I was referred to get a cystoscopy and they found a .3cm papillary lesion during that procedure. They also ordered a urine test which showed high WBC and high PH. I took a week of antibiotics leading up to the TURBT.
Last week, before my surgery, I described my symptoms to the surgeon and he said that the tumor was most likely not the source of my issues. That’s been stuck in my head like a revolving door. Now, I’m sitting at my WFH desk feeling the same constant tingling and weak but persistent feeling of urgency. I have been wondering if this is side effects from the surgery or my hell isn’t over. I’m due to get my biopsy back in the next 3-4 days. I feel like my life has been stolen from me and I have no answers and I’m scared. So scared.