u/Evening_Package_9611

▲ 1 r/GERD

SEVERE BURNING like a chemical burn, nausea, full after few bites. Gastroentrologist not helping

I have had GERD for a year, i also have ineffective oesophageal motility that poppd up at the same time as my gerd, and mild gastroparesis that i had for some years.

Ive been on ppi twice daily for a year, tbh it barely helped trigger foods would always cause burning and i would always feel this cool sensation in my oesophagus as if i can feel liquid/reflux creep up my oesophagus.

For a year ive been doing just fine despite having triggers it wasnt really bad.

But since 2 weeks i have severe pain, im losing weight, i can hardly eat. Been surviving on mostly liquids
It started with a weird pain in my stomach and throat it felt like warm needles, i thought let me take some gaviscon duo before going to bed. I took the gaviscon duo as i usually do before sleeping, but it suddenly triggered severe stomach pain, stabbing pains in my stomach, middle of my back and throat. The pain was so bad i started to have cold sweat. After like 1.5/2 hours of suffering i could finally fall asleep. Woke up the next day still with pain between my shoulders(exactly middle of my back) i was very cautious and scared to eat, so i tried to eat little and not eat anything triggering, it felt like i was improving so i started to eat normally again, after some days the burning became so severe even a small piece of bread would instantly cause the worst type of burn ive ever felt. The days afterward were HELL, chemical burn type of pain i cried for days from the pain. My gastroenterologist said i had hypersensitive oesophagus, she said that BEFORE this insane pain, when i still had the cold feeling in my oesophagus and mild reflux if i ate chocolate or some other trigger food. But my GP now downplays it to oh its just hypersensitivity take some amiltriptilyne even though my baseline changed drastically and i also now struggle with feeling full instantly constantly burping and becoming nauseous when i see or smell food even if i eat, the nausea doesnt last once im done eating, it goes away.

Im at a loss, being on liquids these last few days have calmed things down a little bit but i ate some mashed potatoes and some fish and i can feel burning again.

Something is wrong and no one wants to help me

Has anyone experienced something like this?

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Few days on the lowest dose(10mg) but i want off, is a taper needed?

Ive been on 10mg for like 5 days but i just cant tolerate the side effects and honestly the pain i have already lessened without the help of amiltriptilyne so can i just stop taking them or is a taper needed? The heart palpitations are really bad i dont want to take this anymore

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u/Evening_Package_9611 — 4 days ago