u/Educational_Pay2878

My story:

I started regrowing my hair after shaving my hair in August 2025 because I wanted to get rid of bleached hair and so I shaved almost completely, really short hair (I got them bleached on May 2025)

They regrew back but felt a bit weird on the sides and sometiems itched but I never really cared too much and thought ehh it's probably normal

In December I first noticed I had some king of thinning on the side and I started freaking out a bit but then I said "eh it might be just stress or so"

In March I started obsessing over this because I said "no this can't be normal" and I noticed, other than the sides, diffuse thinning on the top

I went to two dermatologists, the first performed a pull test which was negative (so no TE(?)) and diagnosed me with Androgenetic Alopecia with retrograde pattern, gave me Minoxidil and told me to cure them with it, no Propecia tho, just minoxidil

But j felt like it wasn't enough, this was too fast for it to be just AGA

So I've got my blood test checked and everything came back as normal besides slightly high estrogen and prolactin and a SEVERE vitamin D deficiency (11.1 ng/l)

I started taking vitamin d supplements as well and I went to a second dermatologist and he said "You have nothing at all come back in 2 years"

I felt lost, I felt like nobody could understand what I have

Mom helped me going through this hell and booked a visit for one of the best trichologist in my city and I'll finally get visited by this trichologist on May 12th, 3 days left.

This is ruining my life completely and it ruined 2 friendships I had and the comic convention I was so happy to go to.

People online told me everything

First they said Retrograde Alopecia, then they said DUPA (terrifying!), then they said Lichen Planus Pilaris and it scares me a lot because it seems like it is definetely the case as 3 people with LPP told me theirs looked exactly like mine.

I'm so scared!

My story:

I started regrowing my hair after shaving my hair in August 2025 because I wanted to get rid of bleached hair and so I shaved almost completely, really short hair (I got them bleached on May 2025)

They regrew back but felt a bit weird on the sides and sometiems itched but I never really cared too much and thought ehh it's probably normal

In December I first noticed I had some king of thinning on the side and I started freaking out a bit but then I said "eh it might be just stress or so"

In March I started obsessing over this because I said "no this can't be normal" and I noticed, other than the sides, diffuse thinning on the top

I went to two dermatologists, the first performed a pull test which was negative (so no TE(?)) and diagnosed me with Androgenetic Alopecia with retrograde pattern, gave me Minoxidil and told me to cure them with it, no Propecia tho, just minoxidil

But j felt like it wasn't enough, this was too fast for it to be just AGA

So I've got my blood test checked and everything came back as normal besides slightly high estrogen and prolactin and a SEVERE vitamin D deficiency (11.1 ng/l)

I started taking vitamin d supplements as well and I went to a second dermatologist and he said "You have nothing at all come back in 2 years"

I felt lost, I felt like nobody could understand what I have

Mom helped me going through this hell and booked a visit for one of the best trichologist in my city and I'll finally get visited by this trichologist on May 12th, 3 days left.

This is ruining my life completely and it ruined 2 friendships I had and the comic convention I was so happy to go to.

People online told me everything

First they said Retrograde Alopecia, then they said DUPA (terrifying!), then they said Lichen Planus Pilaris and it scares me a lot because it seems like it is definetely the case as 3 people with LPP told me theirs looked exactly like mine.

I'm so scared

My story:

I started regrowing my hair after shaving my hair in August 2025 because I wanted to get rid of bleached hair and so I shaved almost completely, really short hair (I got them bleached on May 2025)

They regrew back but felt a bit weird on the sides and sometiems itched but I never really cared too much and thought ehh it's probably normal

In December I first noticed I had some king of thinning on the side and I started freaking out a bit but then I said "eh it might be just stress or so"

In March I started obsessing over this because I said "no this can't be normal" and I noticed, other than the sides, diffuse thinning on the top

I went to two dermatologists, the first performed a pull test which was negative (so no TE(?)) and diagnosed me with Androgenetic Alopecia with retrograde pattern, gave me Minoxidil and told me to cure them with it, no Propecia tho, just minoxidil

But j felt like it wasn't enough, this was too fast for it to be just AGA

So I've got my blood test checked and everything came back as normal besides slightly high estrogen and prolactin and a SEVERE vitamin D deficiency (11.1 ng/l)

I started taking vitamin d supplements as well and I went to a second dermatologist and he said "You have nothing at all come back in 2 years"

I felt lost, I felt like nobody could understand what I have

Mom helped me going through this hell and booked a visit for one of the best trichologist in my city and I'll finally get visited by this trichologist on May 12th, 3 days left.

This is ruining my life completely and it ruined 2 friendships I had and the comic convention I was so happy to go to.

People online told me everything

First they said Retrograde Alopecia, then they said DUPA (terrifying!), then they said Lichen Planus Pilaris and it scares me a lot because it seems like it is definetely the case as 3 people with LPP told me theirs looked exactly like mine.

I'm so scared

Does it look like diffuse LPP? I'm terrified.

I'm itchy, not terribly so, but it gets worse when I sweat. Some areas burn a little, but it could be due to the minoxidil since I'm using minoxidil 5% but I see no improvement yet (1 month)

I've been to two dermatologists, and one diagnosed me with AGA + retrograde, while the other didn't diagnose anything, he said I'm fine and to return in 2 years. But I've heard on other subreddits that three or four people have told me I probably have LPP (possibly the diffuse form), and that it often starts as retrograde. What scares me is that a few years ago, a guy told me I looked like him and that he had diffuse LPP, but he was misdiagnosed with AGA and I've seen posts of people with my hair loss and saying they had it.

I haven't had a scalp biopsy yet. I will if necessary, but it's quite expensive, so I don't know if I can afford it.

I'm using 5% minoxidil, and I don't know if it's getting better because I've only been using it for a month, but I'd say it's gotten a little worse.

I also have these little spots on my scalp that look like scars, but I don't know, and I have diffuse thinning on the top of my head.

To be honest, this is ruining my life.

I've also started taking vitamin D supplements because I have a severe deficiency (11.1 ng/ml), but I don't think it's telogen effluvium because the pull test came back negative.

I hate this life