Our dad is slowly dying in front of our eyes
Since december the disease made a giant step and it is going super fast since then. He has lost 25kg in 6 months. I said last time that we only made bad choices for him : trying to keep him at home then making a "short stay" attempt then bringing him back home. Too many changes and I feel like we have been killing him instead of protecting him...our fears and panic only made everything worse. Right now he is hospitalized because he was too agitated and our mum was burned out. It's been a month and we were waiting for a place in the facility where he was for his short stay. But what if this place never arrives ?? I don't think my dad will finish the year and we miserably failed to offer him the quality of life he deserved...hate that, hate this disease, hate the fact that there are so little real help when the disease is going really bad.