u/Ecstatic_Machine_106

Hi! I (20F, 5’0, 95lbs) am in the process of trying to find out what is wrong with me, which is turning out to be a long and complicated one. My life is deeply impacted by my symptoms and no gyno has been able to figure out what’s causing it.

Diagnoses:
Unspecified anxiety and depression
PTSD

Medications:
Sertraline 100mg / day
Hydroxyzine 10mg when needed

Substances:
Smoker (~5 cigarettes a day)
Occasionally vapes
Rarely drinks
No recreational drugs

Symptoms and other observations:

\- I’ve been producing breastmilk for 2 years now. (Prolactin results are normal.)

\- Painful period and ovulation (Pain in thighs, back. Sometimes light but often times causing nausea, cold sweats and difficulty walking).

\- Recurring shedding of decidual pieces causing intense pain.

\- Cycle ranging from 22-45 days this past year.

\- 2 functional haemorrhaging cysts these past 2 years. One ending with me having to stay in the ER overnight due to continuous bleeding.

\- Poly cystic ovaries (not to be confused with poly cystic ovarian syndrome).

\- Episodes of stabbing pains whole luteal phase.

\- Heavy periods. I’ve been anaemic 10 times at this point. I get there at least once a year without fail.

\- Bleeding 7-10 days. Spotting sometimes goes on up until ovulation.

\- Birth control causes me to bleed intensely. Especially during sex. Also causes me more, larger decidual sheddings.

\- Mom has endometriosis, grandmother has had a handful of miscarriages.

\- Clots about the size of large grapes

\- Endometrium on the thicker side before period. Around 17-20 mm.

\- UTI like symptoms before period.

\- Sharp pain during bowel movements during period.

\- Uterus is reflected but then folds over itself (?).

\- Occasional deep abdominal cramps during/after sex.

\- Incontinence during physical activity. Especially jumping.

\- Intense pain trying to poop during periods (causing cold sweats, fainting sensations).

\- Normal thyroid function.

I’ve met with a handful of gynaecologists. Everyone says different things, but never anything conclusive. Please share your thoughts.

Hi! I 20F) am in the process of trying to find out if something is wrong with me, which is turning out to be a long and complicated one. I’m just wondering if anyone relates to these symptoms and if they know why.

- I’ve been producing breastmilk for 2 years now. Prolactin results are normal.

- Painful period and ovulation (Pain in thighs, back. Sometimes light but often times causing nausea, cold sweats and difficulty walking).

- Recurring shedding of decidua.

- Cycle ranging from 22-45 days this past year.

- 2 haemorrhaging cysts these past 2 years. One ending with me having to stay in the ER overnight due to continuous bleeding.

- Poly cystic ovaries (not to be confused with poly cystic ovarian syndrome).

- Episodes of stabbing pains from ovulation to period.

- Heavy periods. I’ve been anaemic 10 times at this point. I get there at least once a year without fail.

- Bleeding 7-10 days. Spotting sometimes goes on up until ovulation.

- Birth control causes me to bleed intensely. Especially during sex. Also causes me more decidual sheddings.

- Mom has endometriosis, grandmother has had a handful of miscarriages.

- Clots about the size of large grapes

- Normal thyroid levels

- Endometrium on the thicker side before period. Around 17-20 mm.

- UTI like symptoms before period.

- Sharp pain during bowel movements during period.

- Uterus is reflected but then folds over itself (?)

I’ve met with a handful of gynaecologists. Everyone says different things, but never anything conclusive. If you experience some of these please let me know!!
Thank you :)
Edit: formulation