u/EconomicsNo8843

Hey everyone, I guess I just need to rant. I feel really alone right now in what’s been happening in my life.

I guess it started last year… I am an athlete and always performed sports on a high level. Especially my football (soccer). Then I tore my ACL and my world turned upside down. Girlfriend broke up with me right before I was going to have surgery. Then what happened was one antagonising year of rebuilding my strength and confidence. I suffered from panic attacks and developed a general anxiety disorder. I just didn’t trust my body anymore and somehow became afraid of getting a heart attack. Because each time I would get a panic attack my heart would go crazy and I would get all these crazy symptoms. I couldn’t work properly because of my knee and mental health… and I still needed to finish my master’s thesis as well but couldn’t muster the energy nor time for it.

I really tried my hardest to crawl out of that abyss, and I believe I am confident that I did. Then a few weeks ago, shit hit the fan, again. I got a UTI and by coincidence they found out that my right kidney isn’t working anymore because it’s been obstructed all my life due to a congenital condition called UPJ Stenosis. The infection spread to that kidney and I spend a week in the hospital. I am still recovering… now have a drain from my kidney that saved my life from the infection and waiting to get surgery to have the kidney removed.

I honestly feel at a loss. I’m afraid and feel nothing like the person I was. I have lost a lot of weight due to the stress and antibiotics and I can see all the hard work I put into the gym wasting away before my eyes.

I know that other people have it worse and I’m sorry for the rant on this forum, I just didn’t know where to post anywhere else.

Once again, sorry for the rant but I just don’t know what to do…

Hey everyone,

I posted here a few weeks ago when I was admitted to the hospital a second time following a UTI that spread to my kidney and got trapped there due to UPJ Stenosis. I had a follow up appointment with the doctor and was very relieved to hear that although they gave me the diagnosis of Urosepsis at the time, it hadn’t spread to my blood and likely was an advanced UTI with early systemic reactions.

I recovered fairly quickly after my kidney was drained with a tube.

A week or two have passed now since then and my energy levels are… weird. In the morning I feel VERY energised. Almost more so than before I was helped in the hospital, only to crash later in the evening and feel absolutely lethargic. I want to go on walks to get at least some cardio in before I am having the kidney removed surgically in a few weeks… but, I can’t seem to muster the energy to do it. I’m a really active person who’s been a football player all her life and also recovering from an ACL tear still that I got surgery for last year. I’m afraid that if I don’t move I will lose everything I worked so hard for.

I’m really grateful that I made it out of the hospital the way I did. Because I know how much worse it could’ve been especially since my CRP levels spiked in the 300s on my worst day.

What also doesn’t help is that I’ve developed severe health anxiety since my last surgery, which was the ACL. I’m in therapy for it but this experience has pushed me down the ladder I was climbing. Now I’m so afraid again, for the upcoming surgery, for experiencing something like this again or worse…

I struggle with insomnia because I don’t want to miss a minute before going to have surgery. But also because I struggle with nightmares almost every other night.

I miss my life before all this and wish that they would’ve noticed my stenosis long before this infection. It ruined my kidney to the point where it’s 0,6% functional. Well… at least my other one has already taken over and appears to be very healthy. Which once again, I’m grateful for.

Sorry for the long rant, I hope you are all doing well and I can’t imagine having actually gone into sceptic shock because my experience was already quite awful. Sending lots of love and good wishes for everyone’s health.

So I am wondering… has anyone experienced something similar? How long does it take for energy to return to normal and is it common to get those “spikes” of energy only to later crash?

Hi everyone!

I have a question regarding working out with a Nephrostomy Tube. I got one placed two weeks ago after I needed to get treatment in the hospital. It turns out I have UPJ-Stenosis and my kidney has apparently lost its function over the 25 years I’ve been alive. I need it removed in a few weeks. Luckily I’ve healed since the infection and am now awaiting surgery. I asked my doctor if I can workout in the gym with the tube and she said I can do slight leg workouts (as long as I keep the weight low and restrict myself to machines) and arms. But it does tell me in the folder that I can’t lift above 5kg… it seems contradictory.

I just had my first workout again and it felt kinda uncomfortable. No hurt but still… it’s weird having a tube coming out of your body and living with a catheter.

Does anyone else have any experience with this or advice?

Hope you all have a good day❤️🍀

This is my second day in the hospital, I’m not admitted to the ICU but they do believe I have Urosepsis. I feel generally well except have a low appetite, my fever sometimes spiking and a high heart rate (tachycardia). It’s the last thing that worries me the most, it won’t go down and I keep having fever spikes. I’m really afraid my body is not responding to the antibiotics…