I am very grateful to have had a liver transplant in 2022 to cure my Carolis Disease. Now that I’m on the mend I decided it was time to continue college as I had to leave in 2017 due to this disease. In 2017 I was working with Voc Rehab to help pay for my schooling and as I went back today to meet with them and hopefully get funding again, I was told that my career goals of becoming a nurse are no longer “appropriate” due to me being immune compromised.
This is very frustrating to me because I’ve met transplant nurses who have had transplants themselves, I’ve met doctors and surgeons that have had transplants and I don’t like that a singular individual who’s not a medical professional, and who knows next to nothing about my condition is telling me what I can and can’t do with my future.
She also assumed that I wouldn’t be able to work full time in the future and that I wouldn’t be able to go school full time now and she assumed these things because she said that SHE has an autoimmune disease and she can’t do those things.
And? I’m not you! Also, it’s not an autoimmune disease!
I’m so irritated. I understand my situation. I understand the risks vs the reward. I can’t live in a bubble and my doctors haven’t asked me to. They want me to live my life and I don’t want to do that behind a desk.