Please read I need some advice/help. My GP is at a loss, and so am I.
For the last 3 months, I’ve basically been in one nonstop vertigo attack.
Three months ago, I randomly collapsed completely out of nowhere and since then vertigo has become the bane of my existence.
For context: I wake up and usually have around 2 hours before it starts. After that, it lasts the entire day until I go to sleep.
I’ve collapsed around 4 times in these 3 months. It happens suddenly with no warning at all, sometimes it even feels like I’ve collapsed while sitting or lying down, which is honestly one of the scariest parts to me and It feels like this horrible dropping sensation like a weight suddenly drags me down by my legs, then It goes.
Even on my “better” days, I’m constantly dizzy, and It’s less “room spinning” vertigo and more like being extremely unbalanced and feeling like I’m on a boat 24/7. Some days it ramps up so severely that I can barely lift my head from the pillow.
Now, 3 months in, I’m suddenly dealing with tinnitus on top of everything, It’s high pitched that stay’s In my right ear, sometimes It switches back and fourth every few minutes?
One really strange thing happened recently, I had an aura migraine, I’ve had aura migraines since I was 9 years old but weirdly I hadn’t had one for around 4 months before this entire shit started happening. During the migraine (They last 2 days), the vertigo completely disappeared for the entire duration of it but as soon as the migraine ended, the vertigo came straight back.
As far as I know, I don’t have any hearing loss, which is one reason I keep doubting myself when looking into this as a possible cause.
I understand it can probably be frustrating when people come into condition specific subreddits without a diagnosis asking “does this sound familiar?”, but my GP genuinely seems completely lost at this point, and I honestly feel like they’ve given up on me.
Every time I research different vertigo related conditions, nothing fully fits but all of this condition fits so much, aside from the hearing loss.
I really need some advice or help. This has completely ruined my life.
Medication they have me trialing for months now that Isn’t changing a thing Is prochlorperazine. Also all my blood tests are perfect (many of these they’ve now done are not routine)