PEP in the UK - My Experience
I had a possible exposure event on Thursday night and needed PEP. I won’t go into the detail of it here, not least because it’s irrelevant to the post but I also don’t want people moralising. If people are that interested, they can probably figure it out from my post on another subreddit. Anyway, I behaved like an idiot. I am angry and disgusted with myself.
Anyway, it might be that my account of accessing PEP in the UK is helpful to others. I started with Dr Google and ChatGPT, both of which suggested that I should be assessed for PEP. I then rang NHS 111. The person I spoke to arrived at the same conclusion and sent me to a walk-in clinic about 10 miles away. No problem. I went, head hung in shame. I waited about an hour and was called in by the triage nurse, who took my BP and said she needed to check if they actually have any PEP. She said that somebody else had been in the week prior and had waited hours, only to discover that they didn’t have PEP or anybody who could prescribe it. A couple of minutes later, she came back and confirmed they didn’t have PEP and I’d have to go to the sexual health clinic the following day (it was 11pm at this point).
I went to my local sexual health clinic the following morning and spoke to reception. I was initially told that they had no appointments available and weren’t running a walk-in service that day, so I’d have to come back on Monday. This would obviously take me well beyond 72 hours and, because I’d done some research, I knew this. I gently pushed back and said there’s no point and that it would be too late by then. She made enquiries with a nurse who asked me to come back at 1:30pm when I would be seen.
I came back as asked and was seen promptly by a doctor. This doctor was so lovely. I was deeply ashamed and I openly castigated myself for my behaviour. I said that I deserve whatever consequences follow, frankly, and I deserve to be anxious about the prospect of contracting something. It is in my mind just desserts for my behaviour. She was really quite compassionate. I don’t know why but I expected to be treated like some sort of deviant but it was quite the opposite. She took a short history from me and said she wanted to prescribe PEP. I had a rapid HIV test, blood tests and a Hep B vaccination. The whole process was pretty painless. I’m two doses into the PEP and, so far, no real side effects. I feel a bit funky about 2-3 hours after taking each dose, with a very mild headache that disappears quite quickly, but that’s all so far. I do tolerate all manner of drugs quite well and it’s pretty rare for things like antibiotics or painkillers to cause me any trouble.
My takeaways:
The NHS prescribing guidelines would suggest that my exposure (unprotected insertive vaginal sex) is not of sufficiently high risk to warrant PEP but my experience is quite clearly that clinicians have some discretion based on the circumstances of the exposure. Had I just assumed that I wouldn’t be prescribed PEP based on the guidelines, I would have missed the opportunity.
I did need to advocate for myself when dealing with reception staff. Had I said “okay, I’ll come back on Monday”, it would have been far too late to start PEP. That’s probably a training point for reception staff. PEP = emergency.
I was treated with a level of dignity and compassion that was surprising and, actually, quite touching. I was not made to feel like some reprobate or a burden. It’s really not that bad.