u/Confident-Potato6847

So for the first time today I was told by a cardiologist that I’m “not crazy” and “imagining symptoms” and that he believes me. It felt so good to hear those words. He told me I have autonomic dysfunction/dysautonomia and that he’s not sure I fit any of the subtypes 100% and that there’s no real way to know for sure. He said he thinks maybe I have POTS but isn’t sure. I asked him about a tilt table test but he said they can be inaccurate and they’re honestly barbaric.

He prescribed me 25mg of metoprolol (half a pill for the first week) and I’m on a lot of meds already so I’m nervous to take it but I definitely am going to. Besides the beta blockers, what else can I do? And should I try to pursue getting a diagnosis for POTS/any subtype or should I just accept the umbrella term and be happy I even got that? I’m a very label oriented person and being diagnosed with such a broad term leaves me really confused.

Also wondering if anyone has any metoprolol experiences or recommendations :)

I have some good news! After years of suffering I saw an immunologist who not only listened to me and reassured me that it isn’t just “anxiety” or “hormones” that’s causing my symptoms, but mentioned MCAS before I did! I have to now do the 24 urine test and the bloodwork. Just wanted to share some positivity and hope :)

Hi friends. I, 21F, have been experiencing a variety of health issues for nearly a year now and feel like it may be MCAS. It feels like a lightbulb went off after discovering it because it explains every single issue I’ve suffered from for years. I’ll list all of the symptoms and any input would be extremely appreciated. I also would like to add that I have an appointment scheduled for next week to talk to my immunologist about this.

-hives (managed somewhat with levocetirizine)

- itchiness and weird rashes

- facial flushing

- butterfly rash and blood pooling in legs after showering

- tachycardia

- feeling faint often

- reflux

- frequent nausea and vomiting

- asthma like symptoms after any sort of exercise even though I’m not asthmatic

- inability to regulate body temp and that being a trigger

A lot of these symptoms will happen at once. For example, facial flushing, tachycardia, feeling faint and nausea/vomiting out of nowhere is a common combo.

I always thought these were separate issues, but I just heard someone talking about their experience with MCAS and I was like “that sounds exactly like all the things I have.” Thank you so much in advance for any advice or input, and I wish everyone on here health and healing :))

Does anyone have any recommendations for 10mg edibles (preferably sativa) for someone with a high tolerance?