u/Chubb_Life

I see so many PPPD recovery posts and videos that advise people to hurry up and get back to normal life. Am I the only one who gets angry about this? Whenever I push myself too much—even just and extra couple hours of work at the computer—I experience a setback to an earlier, crappier stage in my recovery. Like a board game where you land on “go back 5 spaces.” I CANNOT just go to stores, gatherings, I can barely handle short car rides. I’m getting so tired of this trope! I find it patronizing, demoralizing, and totally diminishes when I’m experiencing. Just me??

I was overcome with dizziness a year ago and ended up in the hospital for a few days. Docs thought it was benign positional but the physical therapist said vestibular neuritis. I had constant dizziness and double vision for weeks. I was out of work for a month. I finally started feeling better later in the summer though I still had vision stability issues.

But in the fall I took a multi-day road trip and it fucked me all to hell. I was bedridden and out of work for 3 months!! I’m at the 6 month mark and been back to work FT since March and it’s so hard. I’ll start improving and then have a major setback. I’m concealing as much from my bosses as I can because I don’t want them to perceive poor performance because my husband has also been out of work and his unemployment ran out.

ANYWAY, my point is, I’ve been suffering since November and did all their stupid tests and just NOW getting a neuro referral and who knows how long before I actually see someone to discuss SSRI treatments. This has been a hell ride.