Long Term Nerve Pain/Inflammation/Tingling Burning
Hi there. I am going to try to condense this story for the sake of whichever kind soul is reading this. For context, I am M23 ~160 lbs, 5'10, and I smoke weed/pens daily. Potentially relevant conditions are; my dads family has a long history of substance abuse. my mom has Multiple Sclerosis and has passed me Polycystic Kidney Disorder to some degree. I lift heavy weights everyday and I am a college student.
About a year ago as of me typing this, I feel a random tingling sensation in my feet at night and I assume it's some bugs my dog has brought into my apartment, but it never goes away. A day or so later I feel it travel across the rest of my body and then suddenly become incredibly intense and painful, it felt like I was being violently bit by something all across my body constantly, back, feet, chest, everywhere. I don't know what's going on so I investigate the bug theory for a while and there's no bugs of any kind to be seen and no microscopic fellas in my space either. This lasted for a few months, I then take myself to a family practice near my work for help and for the next 6-8 months I've been going through the insane referral process going from specialist to specialist and medication to medication trying to diagnose what is going on with me.
As of then the pain and discomfort is still constant and incredibly debilitating, I feel it in my feet moreso than anything but the burning and pulsating feeling is in all my extremities and across my thighs/chest at random. The burning and tingling in my feet is by far the most prominent.
I have done;
MRI of my Brain, 3 separate MRI's of my back/spine, EMG Nerve Compression Study
Taken;
Escitalopram, Gabapentin, Pregabalin, Dulexotine, Prednisone
Been to;
PCP, Psychiatrist, Nuerologist, Podiatrist
And with incredibly mixed experiences I have allegedly ruled out my symptoms being a cause of, HIV, MS, PKD, Infection, and Nueropathy. I have benign csyts on my kidneys but my mother has an absurd amount on hers but has never had my symptoms, I tested negative for HIV, and none of the doctors suspect MS because I have not been peeing blood, fainting, or shown any other obvious MS signals.
My pcp says the nerve compression study showed nothing of interest, but that there was mild macular degeneration in a spinal section of my MRI. I also would often feel the pulsating sensation in one specific spot on my spine during this entire experience which makes me suspect I did indeed compress something there from weightlifting, which then causes the inflammation in my extremities. My doctor seems to not think so.
There was also an elevated white blood cell count shown when I got my blood drawn early in this experience. But nobody seemed to think it was important.
________
And now i'm here, I am seeing a pain specialist in a few days, praying that they will have some kind of help for me because the inflammation, burning, tingling and pain is a at a new high right now, and I am at a complete loss of what to do other than wait and hope. This has been the hardest year of my life and if anybody here has help for me. I would be oh so deeply grateful.
I want to specify that while my symptoms have been very discomforting and often painful. I haven't had any kind of motor issues or functional problems with my body, I still lift as heavy as I did, I am still able bodied and can walk, run, and do daily tasks, I just am utterly discomforted 24/7.
If there's anything else I should share for context please please do ask.