u/Bright-Currency-3999

How do you care for your mental health when dealing with this disease. Its affected my life so much to where I have to avoid doing things or going places because of it, because of the physical pain. Also permanent disfigurement. I don't know what to do with my life. HS is the cherry on top of other things in my life, including female balding, and just being extremely ugly in general. It's extremely mentally painful. What kind of therapist am I supposed to find for something like this? I don't know who to talk to or what to look for.

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u/Bright-Currency-3999 — 9 days ago
▲ 6 r/ugly

I have features found in fetal alcohol syndrome even though I for sure don't have it, I literally just came out this way. I look deformed. Why couldn't I at least come out normal/average/mid looking. Why did I have to look like this. I think I come across as disabled, even though I'm not, because of how I look and the fact that Im quiet and awkward because of anxiety/shame. The way people talk to me or treat me sometimes comes across like they think I'm intellectually challenged. Its soul crushing. I'm so ugly and stupid looking and there's nothing I can do. I hate myself more than anything in the world. Even a cockroach has more worth than I do

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u/Bright-Currency-3999 — 9 days ago
▲ 4 r/ugly

Im hideous in the face and body, been bullied for it my whole life, now on top of that, I am balding. Im a woman and I'm balding. It's not preventable just horrible genetic luck. Funny because no one else in my family is balding not even the men, but here I am. It's over.

I also have Hidradenitis a skin condition that causes horrific painful cysts that leave scars holes and craters in the skin, on basically the worst area of the body you can imagine. I feel like Im being stabbed 24/7. Its life long with no cure. It can even lead to sepsis. Google at your own risk

What did I do in a past life to deserve this? I cant go on like this. It's just too much.

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u/Bright-Currency-3999 — 12 days ago

Honestly I'm just in grief, Unfortunately I can't take minoxidil because of the way it affects the heart, and everything else (birth control, Spiro) has been useless except I haven't tried Finasteride yet, but I probably won't be able to because I'm female. Basically I'm finished I guess

u/Bright-Currency-3999 — 12 days ago
▲ 5 r/Humira

I have Hidradenitis and my last option left is to try a biologic, I'm wondering if being immunocompromised means you can't get filler injections/microneedling/etc anymore? Also wanting to get a rhinoplasty in the future and I'm worried if being on Humira means I have to stop before the surgery?

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u/Bright-Currency-3999 — 12 days ago

I live somewhere extremely EXTREMELY hot and humid weather year round. There isn't even a real winter season. Trust me I want to leave but its not in the cards any time soon or ever. I've lived here my whole life and my body is still not adapted. I get heat rashes regularly and feel like passing out. I'm drenched in sweat five minutes of stepping outside especially groin area which is where my HS is. Heat = sweat = friction = HS

Literally feels impossible because of where I live excebrates the disease and theres nothing I can do. I'm so beyond depressed. I don't have words for it I just don't. I shower two sometimes three times a day as I have OCD and sweating is extremely uncomfortable for me, I stay very clean. And I try to stay as dry and cool as possible at home using a fan to dry myself and try to wear comfortable loose clothing but I can't avoid going outside as much as I wish I could.

How do you cope with this??

I'm depressed with no hope for life anymore. My groin is completely destroyed

I have tried every medication except biologics which I am wanting to try but idk if I cah even afford it. I feel hopeless.

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u/Bright-Currency-3999 — 16 days ago