u/BellamyGriffin

So I don't know if this is the right place to ask so I apologise in advance but tomorrow Instagram is going to officially remove end-to-end encryption from its app/chats. I'm just wondering if someone could tell me whether removing ("unending") messages in the chats would make a difference and exclude them from being able to be read by everyone or if not.

I'm aware this is likely a very stupid question for some people but I'm really not at all tech/media/social media-savy and I'd really appreciate a genuine response.

I know your data is stored somewhere anyway and that you can't do anything about that anymore but I would assume since that's in the past it could possibly still be encrypted in those databases? Sorry if that's stupid to think as well. But the actual physical messages are obviously still in your chats right now and could be read/analysed by meta ai (assuming meta is using those messages to train their ai) starting tomorrow.

So I just wanna know if removing messages that ie. include private information would make a difference at all or if there's nothing to be done... Except maybe delete your account and request the purge of your data in some way.

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u/BellamyGriffin — 7 days ago

I found a "Ominis as various NPC's" mod on Nexusmods during my desperate quest to make my game experience more ominis heavy but it was last updated in 2023. I downloaded it and according to my unzip program there's nothing wrong with the files yet they won't open.

Now I was just curious whether any of you are using that mod or have used it in the past and can tell me if it still works. Because this is my first time downloading a mod from nexusmods (usually I used the in-game mods) and it might very well also just be my stupidity.

Thanks in advance!

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u/BellamyGriffin — 9 days ago
▲ 3 r/chiari

Out of curiosity. How many of you that already had decompression surgery are from Europe and where did you get surgery? How was your experience and how are you doing now? I'm specifically asking for european experiences because I live there myself. This is more of a search for good specialists than being interested in people's experiences outside of Europe.

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u/BellamyGriffin — 10 days ago

It's happened several times now that I've had random Arabic words in replies even though I've never used or referenced the language in any way and frankly don't understand a word (i.e, خطوات) This is super annoying. Has this been happening to anyone else too?

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u/BellamyGriffin — 11 days ago
▲ 11 r/chiari

I'm mostly writing this post to tell all of you to continue advocating for yourself because it may just be worth it.

I (F/26) had an upright mri done yesterday after finally having found a specialist that took me seriously a couple of weeks ago (albeit not a neurosurgeon or a neurologist). He was an orthopedist that specialized in atlas therapy. He referred me to get an upright mri done after a short conversation about my CM1 that was coincidentally diagnosed four years ago, my symptoms, and my suspicion of there being more to it than chiari. I've had unexplainable symptoms and was generally someone who was frequently ill all of my life prior to this and everything got significantly worse in the past 2/3 years.

He was the first doctor that ever listened to me and took me seriously. All the neurosurgeons and neurologists I have met so far were either disrespectful, dismissive, downright insulting, incompetent, or all of these combined.

They didn't say it to my face but they thought I was exaggerating my symptoms or even just a hypochondriac. But I had read tons of medical papers and done extensive research about the brain and spinal cord and their respective functions over the last few years and I was pretty convinced my multi-systemic symptoms stemmed from chiari or that there was more to it.

Anyway while discussing the imaging I was told that my brainstem is being compressed from all sides (in varying severities) by my askew cervical vertebrae and dens axis as well as the herniation and that this was most likely responsible for my symptoms or the severity of existing chiari symptoms. Also my herniation which was originally at 17mm is now at 30.

I will obviously have to go to a neurosurgeon with this and know very little about it as of right now. But I know I was right. I know trusting my gut led me here. And I just wanted to share this experience in hopes of maybe giving you all some hope that advocating for yourself could lead to some clarity even if it takes years.

Edit: I'm reposting this without the imagings because I didn't realise that wasn't allowed.

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u/BellamyGriffin — 15 days ago